Previous Thread
Next Thread
Print Thread
Page 2 of 3 1 2 3
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
I know I still do not have a diagnosis, but oh my goodness, my mouth is killing me today. The eroding flesh on the interior of my lower lip, all the way down to where it attaches at the chin. The numbness and tingling, interior and exterior of that area, the swelling of my lip and the severe discomfort. It's all so exausting. Eating, drinking and even my speech is affected. Thursday is my appointment.


I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Could you have thrush? That can be very painful.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
Christine, unfortunately, I do not have thrush, I wish this was thrush, I know how to very easily treat that☺. I am hoping that this is a neuropathy issue, not easily treated, but I am doing everything available at this time B12, careful nutrition, avoiding activating foods, etc. But, the lumps in my lower lip area need to be biopsied, and maybe the pathology will show some weird fungal infection? Something else more easily treated than neuropathy. Or OC. As time passes, having observed and cared for many patients with CA, of many kinds, this, to me does not act like a malignant growth. But, that's just me guessing...as you say here, until there is a biopsy, there is no way of knowing. I so hesitate to take time and space from those who have diagnoses, but this is the only place where I share my concerns as I don't want to dump on my husband. Again, I am so grateful for this piece of the internet community.


I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
Well, on my way to Santa Barbara for an ultrasound and biopsy today, finally. Its an hour from my house, but a beautiful drive with my husband.

Last edited by Retiredpsychtech; 11-30-2017 11:06 AM. Reason: Misspell, missed word!

I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Thats great! You will finally find out what you are dealing with. Hopefully its non-cancerous and easily fixed after the diagnosis. Please let us know how you make out.

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
Well, for goodness sake, I'm still on a run around. The Dr I saw felt that he could not do an adequate biopsy in my mouth so he referred me to an ENT who specialises in head and neck cancer to do the biopsy. I am actually thankful for that referral, but frustrated with the wait. I'm also seeing a dentist this Wednesday, he's doing a pandenscopy and I'm getting a good look at my teeth and gum health now, just because. And just because life is interesting, I now have a hard lump that either I just noticed, or it just appeared on the very lower, interior edge of my lower mandible, same side, right, as the outer lower lumps. So, it's actually on the floor of my mouth, but attached to my interior jaw, if that makes sense?

Last edited by Retiredpsychtech; 12-09-2017 04:09 PM.

I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Oh boy!!!! Im so very sorry to hear you didnt get very far with your appointment. Hang in there!!! Hopefully your referral will have been a good move and you will find yourself a great ENT who will get to the bottom of this.

Wishing you all the very best!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
Thank you Christine, I appreciate your kind response☺


I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Oct 2017
Posts: 19
Member
OP Offline
Member

Joined: Oct 2017
Posts: 19
Well, I am going to get this uncomfortable lump that is increasing in size every day, removed next week, and I am going to get my numb, ulcerated, thickened, lower lip, biopsied as well. By December 21, with an ENT, who specialises in head and neck cancer. In Santa Barbara.


I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Wishing you all the very best with this. Please let us know what the results are. Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Page 2 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5