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Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Johnnie, I dont think I mentioned if you are going to do HBO you may first need to have tube put in your ears. One facility I went to required all patients to have this done prior to starting their sessions. Its not a big procedure. Its outpatient surgery with some ENTs doing it right there in their office. The only inconvenience I had with having the tubes in my ears was needing to always use ear plugs when I would take a shower. To me, having the tubes put in was one of the easiest things Ive done. After going thru rads, chemo and several surgeries I went thru so many worse things than getting the tubes. If your doc doesnt mention the tubes, ask if you will need them.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2015
Posts: 18
Johnnie Offline OP
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OP Offline
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Joined: Jan 2015
Posts: 18
Thank you Christine. We are going to U of F Friday and hopefully get some answers. Just Friday, my ENT told us the same thing. He said he does them all the time and recommends we check with U of F. I appreciate the advise.


Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Let me know how you make out. Good luck!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2015
Posts: 18
Johnnie Offline OP
Member
OP Offline
Member

Joined: Jan 2015
Posts: 18
I have had 40 hyperbaric treatments and I am on IV antibiotics (Ivanz). This is my forth week of IV. The infectious disease doctor said that most of his patients with bone infections are completely cleared in 3 weeks. Subjectively, I still have an issue because when I open my mouth wide, I have pain. With other rounds of antibiotics, (through my gtube)-at the end of the round of antibiotics, my jaw had pain upon opening. Has anyone had experience with this or another antibiotic that is more effective? My bone scan showed probable osteomyletis of the jaw. I would appreciate any and all suggestions. My infectious disease doctor is nice but really not interested.


Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
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