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| Joined: Aug 2016 Posts: 2 Member | OP Member Joined: Aug 2016 Posts: 2 | I had stage 4 in 2015. Been 2 yrs since I completed radiation.Still cancer free. It was at base of tongue and tonsil stem. My speech is okay although my voice is higher pitch than before. I have fibrosis in neck and on a permanent peg tube. I'm very happy to be alive and thankful for everyday. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, dad Its always nice having survivors who are well past diagnosis, treatment and recovery join our ranks. Im glad to hear you are doing well despite your ongoing problems with eating and your neck. You're not alone, I also still have my feeding tube. For me, its going to be here for the rest of my life so I can either be upset over it or accept that I need it. In the whole scheme of things, being stuck with a feeding tube is not that bad. Your positive outlook can be a big help in adjusting to living with a feeding tube. Theres alot more of us tube feeders than you would think! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2016 Posts: 111 | Ha! I'm pumping three boxes of ISOSource as I type this. (Love that unflavored gruel!) I have to agree with Christine, pump/tube feeds are not the worst thing. More of an inconvenience than anything else.
Welcome Dad! Glad to have you onboard. Two years out is close enough to remember the details yet far enough into recovery to offer a lot of insightful knowledge to the recently diagnosed. Great to see how after recovery, people can resume their lives with a "new normal"
Looking forward to reading your posts - if you're so inclined.
Best Wishes on your continued good health
1997 SCC Tumor on tongue - Partial Gloss 1997 Met to Lymph Radical Neck Dissection / 2nd Partial Gloss 6 weeks chemo and radiation Brachytherapy 2011 Stroke 2014 Recurrence SCC at Base of Tongue / Hemi-gloss Free Flap reconstr from thigh PEG Tube Radiation Permanent Issues with speech and swallowing 2018 - Bleeding throat / mouth 2019 - Bleeding throat / mouth 2019 - 3rd diag Cancer SCC Base of mouth / jawbone 2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue | | |
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