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#194997 08-14-2017 04:48 PM
Joined: Aug 2016
Posts: 2
dad Offline OP
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Joined: Aug 2016
Posts: 2
I had stage 4 in 2015. Been 2 yrs since I completed radiation.Still cancer free. It was at base of tongue and tonsil stem. My speech is okay although my voice is higher pitch than before. I have fibrosis in neck and on a permanent peg tube. I'm very happy to be alive and thankful for everyday.

dad #195000 08-14-2017 05:58 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF, dad smile Its always nice having survivors who are well past diagnosis, treatment and recovery join our ranks. Im glad to hear you are doing well despite your ongoing problems with eating and your neck. You're not alone, I also still have my feeding tube. For me, its going to be here for the rest of my life so I can either be upset over it or accept that I need it. In the whole scheme of things, being stuck with a feeding tube is not that bad. Your positive outlook can be a big help in adjusting to living with a feeding tube. Theres alot more of us tube feeders than you would think!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
dad #195001 08-15-2017 08:33 AM
Joined: Sep 2016
Posts: 111
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2016
Posts: 111
Ha! I'm pumping three boxes of ISOSource as I type this. (Love that unflavored gruel!) I have to agree with Christine, pump/tube feeds are not the worst thing. More of an inconvenience than anything else.

Welcome Dad! Glad to have you onboard. Two years out is close enough to remember the details yet far enough into recovery to offer a lot of insightful knowledge to the recently diagnosed. Great to see how after recovery, people can resume their lives with a "new normal"

Looking forward to reading your posts - if you're so inclined.

Best Wishes on your continued good health


1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue


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