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#194932 - 08/02/17 02:42 AM Survived 12.5 yrs after rads  
Joined: Oct 2004
Posts: 30
mawalton Offline
Contributing Member (25+ posts)
mawalton  Offline
Contributing Member (25+ posts)

Joined: Oct 2004
Posts: 30
alabama
My husband survived for 12 and half years after radiation and chemo for stage 4 BOT squamous cell carcinoma. Most of the years were fairly healthy ones w/ little things cropping up now and then. We enjoyed children and grandchildren, retirement, and a move to another city in those years. 8 months ago, he passed away as a result of the effects radiation from 12 and half years prior. Carotid blowout twice w/ repairs using stent grafts, infection in spine, neck, brain which was not able to be effectively treated for healing of open wound in his throat. Finally had a stroke and eventually died due to all of the above. He preferred not to make yet another hospital visit at the end and we brought him home with Hospice and help from an additional agency to be sure he had the very best care. We were married for 44 years which could have ended 12 and 1/2 years sooner if not for treatment. He never complained and was just glad to be alive those years. He always told me that if he had it to do over again, he WOULD choose treatment. I'm so glad that he did. Im thankful for the doctors, treatment options, and time. Best wishes and prayers for those suffering from this terrible disease and it life-saving, horrible, wonderful treatment!

#194964 - 08/10/17 03:08 PM Re: Survived 12.5 yrs after rads [Re: mawalton]  
Joined: Sep 2016
Posts: 95
bjmpittsburgh Offline
Supporting Member (50+ posts)
bjmpittsburgh  Offline
Supporting Member (50+ posts)

Joined: Sep 2016
Posts: 95
Sorry for your loss. Radiation / chemotherapy / surgeries.......they all help, but also adversely impact long term health as you unfortunately know. Take care and bless you for being there for your husband.


1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing

#194979 - 08/12/17 04:32 AM Re: Survived 12.5 yrs after rads [Re: mawalton]  
Joined: Mar 2011
Posts: 1,004
tamvonk Offline
"OCF Kiwi Down Under"
tamvonk  Offline
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,004
New Zealand

I'm so saddened to read your post. A timely reminder to us to have regular checkups of the carotid arteries post radiation.
How wonderful to hear of your extra years together and the enjoyment of Grandchildren.
Love and hugs to you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

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