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#194900 - 07/19/17 02:01 PM Re: Just started RADS, question. [Re: WendyinGa]  
Joined: Jun 2007
Posts: 9,716
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,716
PA
Wendy, are you ok??? Your post is almost the exact one as yesterday like you did a copy/paste.

Check your PMs!!! Click on the tiny flashing envelope to get your messages.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#194927 - 08/01/17 04:19 AM Re: Just started RADS, question. [Re: WendyinGa]  
Joined: Apr 2017
Posts: 47
WendyinGa Offline
Contributing Member (25+ posts)
WendyinGa  Offline
Contributing Member (25+ posts)

Joined: Apr 2017
Posts: 47
Valdosta,Ga.,USA
Quick update: or i hope it turns out quick. I am on my last radiation treatment on Tuesday. Then i will have made it, through one of the most difficult things ive ever experienced.

For informative purposes, i wont sugar coat this. The mouth,gum, and tongue. Sores/blisters have been plaguing my mouth for weeks. Now i can feel them and see them. They are painful and burn, to alleviate the pain i do a number of things. I use magic mouthwash, 50mg fentanyl patch, 2 benadryl, and a 10mg/325mg percoset. At this point in treatment, i sleep a lot. I eat somewhat. Right now it is just water and a couple of sips of boost. I know it HAS to be more, but frankly the burning tongue and my upper palate is so sore and tender that i cry like a 2 year old. I tried soft, jello, creamy soups, clear broth, any kind of soft food. Everything hurts. Thankfully, my team has at least given me 2 hydrations. Ive gotten refills on prescription, and made sure everything
was in order, before im finished with the radiation and oncology team. But i am hanging in there. This will not stop me. Ive went from 267lbs from the beginning of treatment to 228 lbs. Most everyone says that is great. You lost all that weight! I have to remind them that Cancer is the worst diet EVER!

So to all that have gone through this and those to come i wish you all peace and comfort. May the Lord walk with you through your troubled times.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor.---awaiting pathology
05/08/17 Cancer still present
05/10/17 2nd surgery- removing more
06/05/17 Simulation done, PET on 6th, RADS start on 06/20/17
07/11/17 15th treatment completed. Halfway point!
08/01/17 Last treatment! Woohoo!
08/16/17 Hospitalized due to malnutrition and dehydration
08/24/17 Home again
#194928 - 08/01/17 10:59 AM Re: Just started RADS, question. [Re: WendyinGa]  
Joined: Feb 2017
Posts: 66
sooner Offline
Supporting Member (50+ posts)
sooner  Offline
Supporting Member (50+ posts)

Joined: Feb 2017
Posts: 66
Thank you for the update. Hopefully you will find you way through the recovery process with all the support you need. I am so grateful for the PEG tube that kept my husband alive but even more grateful that on Friday, he will have it OUT! You will get through this.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
#194931 - 08/02/17 12:57 AM Re: Just started RADS, question. [Re: WendyinGa]  
Joined: Jun 2007
Posts: 9,716
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,716
PA
YIPPEEE!!!!

Congrats on finishing your treatments today, Wendy!!!! Im so proud of you. smile I know you struggled and how difficult this was for you. Time to rest and focus on your intake. If you notice anything different that pops up dont hesitate to call your medical team and get checked out. Of course, you can continue to post here, ask questions or read and absorb info.

In only a few more days/weeks you will be feeling a little better. One day you will wake up and feel almost normal, you will be surprised at finally feeling ok for a change. Recovery can be a long and frustrating time. We can never recover as quickly as we think we should. Keep focusing on your intake and it will pull you thru til the time comes when you are feeling more like yourself again.

Let the healing begin!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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