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#194905 07-20-2017 01:58 PM
Joined: Feb 2009
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When you live only on liquid through a feeding tube, how do you add sufficient fiber. Adults should have 25 g a day but most only get 15 g. daily. The formula I'm on has zero fiber in it. I've added a fiber powder which equals 9 g daily and has only produce lotsa lotsa gas and slightly firm diaherra. Any one have suggestions?

sandisays #194906 07-20-2017 03:03 PM
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I can only tell that during treatment my husband, eating with a PEG tube, was having a huge struggle with lots of digestive issues. The protocol from the Cancer Center just was not providing results that were improving his situation. We made an appointment with the GI doc who put in his PEG tube. We took everything the Center told us to do and reviewed it with him. Best money we ever spent. He modified what we were doing to deal with several digestive issues related to treatment, with fiber management being one of them. In a nutshell, he felt they were being too conservative with what they were telling us to do. It made a huge difference. He had us try his first line of treatment and told us to call ASAP if this did not work and he would help us modify. He is still using his PEG tube but less and we have had to adjust as he has started eating more foods. You may need to let someone on your team know and ask for a different approach.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
sandisays #194907 07-20-2017 05:03 PM
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Do you have a nutritionist at yoru treatment facility you can talk with? There are many formulas that have fiber added. Check with your doc or the nutritionist. Some patients add benefiber or other similar over the counter fiber product to their formula. Easiest way to add things is if you are doing the over night feedings thru the kangaroo pump. You can put 3 cans (with a little water) into a 1000ml bag along with fiber or other additive, shake well and let it run overnight while you sleep. No feeing pump? Check with your doc or nutritionist to arrange to give you a prescription for one. You can get this thru a medical supply company along with all the necessary requirements (drain sponges, syringes, etc).


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
sandisays #194910 07-21-2017 08:35 AM
Joined: Sep 2016
Posts: 111
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ISO-Source contains 3.8 g per box so to maintain the minimum you would use 7 boxes per day.

You may want to supplement your current formula with another source to reach your daily fiber goals. Talk with a doctor or nutritionist before you start.

In Pittsburgh, we have GNC's and they have all sorts of powdered supplements that could be pushed through the PEG.

Good Luck


1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue


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