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#194693 06-21-2017 08:41 AM
Joined: May 2017
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Joined: May 2017
Posts: 5
mom had half her tongue removed 4 months ago
Most of the time you can understand what she is
saying but at times she still needs to write down what she is saying.

Brief phone calls with people who understand the the situation are ok.
Using the phone with someone who does not understand the situation is a no go.
She won't use the phone, another loss.

i was thinking TTY is available for the hard of hearing something similar
must exist those with speech difficulty. I found Speech-to-Speech Relay Service.
Its a free FCC regulated state based service that makes a 3 party confidential call
with a facilitator translating when words become incomprehensible.

we haven't used it, i just found it last night. Anyone here have experience with itt?



Adult Daughter of Mother with OC
baileyif #194695 06-21-2017 11:41 AM
Joined: Feb 2017
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Joined: Feb 2017
Posts: 67
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No, we have not used that but at one point the speech path told us about an text to speech app on the phone that could be used. We thought at the time my husband might not get his speech back. Thankfully, he did and we did not pursue the app route. You might ask your speech path for some suggestions/options.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
baileyif #194696 06-21-2017 12:16 PM
Joined: Jun 2007
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
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There are many apps to help people with text to speech. I had a close friend who used the Speak It app for iphones/ipads as her main way to communicate. Her voicebox was removed during one of her many OC recurrences. She made phone calls with it all the time. Most patients who lose their ability to speak will either email or text instead.

Heres a link from the regular landline phone company in the northeast, Verizon. They have a special department dedicated to helping customers with speech or hearing impairments. They offer many things (usually at little of no cost) for people with disabilities. For TTY and the relay service, special equipment is needed. For anyone who is outside of the Verizon landline area, check with your local telephone company or cable company if you have VOIP (voice over IP AKA internet based home phone service).

Phone service for people with speech or hearing impairments



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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