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#194586 06-05-2017 08:19 PM
Joined: Apr 2017
Posts: 61
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Supporting Member (50+ posts)

Joined: Apr 2017
Posts: 61
Hi gang, Just got my flouride trays today. They fit fine, but are they supposed to be this flimsy? They don't seem like they will last through constant use. How long do they normally last?


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
WendyinGa #194589 06-06-2017 06:51 AM
Joined: Feb 2017
Posts: 67
Likes: 1
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Joined: Feb 2017
Posts: 67
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My husband's looked flimsy but made it through treatment.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
WendyinGa #194603 06-07-2017 06:45 PM
Joined: Apr 2017
Posts: 61
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Joined: Apr 2017
Posts: 61
Thanks sooner. I was wondering.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
WendyinGa #194607 06-08-2017 12:22 PM
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
Hi Wendy - I got my trays when I started treatment in spring 2009. I've used them every night ever since, cleaning them with a toothbrush after each use. They've held up beautifully. I do have a suggestion though: denture cleaner. I'd noticed dark spots cropping up on the trays after awhile and was initially scrubbing them with an abrasive cleaner and sponge. But when my dental hygienist pointed out that this could damage the material I began to think about another way. Can't recall where I first read about it, but now every few weeks I soak them overnight with one denture tablet and it works like a charm.

Hope your PET scan gave good results, and best of luck with the RADs. Please visit us often, we're here to help.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
WendyinGa #194616 06-09-2017 06:11 PM
Joined: Apr 2017
Posts: 61
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Joined: Apr 2017
Posts: 61
Thanks David2....that tip will come in handy. It has been stressful. But I'm happy to say, that the PET came out clear! Now I'm waiting on rads to start. Thanks for asking.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
WendyinGa #194639 06-12-2017 02:46 PM
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
Great news on the PET, Wendy! Congrats. Hang in there for the rads. I recommend doing nothing but relaxing and eating between now and the 20th - all the foods you love and crave and as much as you want. As always, we're all here for you at any time.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
WendyinGa #194659 06-16-2017 05:01 AM
Joined: Apr 2017
Posts: 61
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2017
Posts: 61
Thanks, David2...and everyone. I'm a very "worry" type person, so I have been losing sleep, over getting radiation. That being said, I am wanting to get this started and over with.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.

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