| Joined: Apr 2017 Posts: 81 Likes: 2 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 81 Likes: 2 | Today I met with the nutritionist in preparation for radiation that begins 6/13. Key take-aways: - 2 liters of water per day - 75 to 88 grams of protein per day - 1600 to 1800 calories (I'm 5'2" and usually my calorie limit is 1200.) Taking Christine's advice and enjoying favorite foods before I begin. Tonight's special treat: glass of red wine. With the pre radiation tooth extraction there were limited options When I begin radiation I will do a post on the blog section and will update for each day of radiation. I have an appointment with the speech and swallowing therapy department and may take advantage of the free exercise physiology session. My RO wants me to start doing yoga. Thank you all for reading my posts and your support. I will be candid - terrified of radiation side effects - but will work hard to keep up hydration and nutrition.
Keep fighting friends!
Me -- currently 53 years old SCC diagnosed 3/7/2017 at age 48 Staging SCC HPV+ T0,N1 primary unknown PET 3/16, no activity, biopsies 3/23 benign TORS surgery identified 2mm tumor in BOT (vallecula) Cancer restaged T1, N2, M0 Begin 30 sessions of radiation (60 Gy) 6/13 Completed radiation 7/24/2017 1st MRI clear 10/23/2017!! 2nd MRI clear 10/17/2018! | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hang in there Stef! We are all always fearful of the unknown. Ive watched countless OC patients struggle thru rads due to not focusing on their intake enough. That is the key to getting thru it the easiest possible way. Every single day hit the minimums of 2500 calories and 48-64 oz of water. If you are slim and/or can push to take more in that can only help to make it easier. Even 3500 calories a day is not too much for those going thru rads or in the first months of recovery. Its too easy to think "ahhhh, I messed up today, tomorrow I'll do better". I was one who had that way of thinking. Well as I quickly found out, tomorrow never comes and you quickly turn what should be a daily routine into a gigantic game of catch up that never really happens. I fell into that hole and it took several hospitalizations for malnutrition and dehydration to pull myself out of it. You are far better organized than I was. I really hope you can hit the daily minimums consistently and even take in more on some days so you can be one of the few lucky ones who sail right thru with barely any side effects. Good luck next week ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2017 Posts: 81 Likes: 2 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 81 Likes: 2 | Thank you, Christine! I am taking all your advice to heart. I am so sorry you had to go through so much and incredibly grateful that you are sharing your experience to help others.
Hope I may pay it forward someday!
Keep fighting friends!
Me -- currently 53 years old SCC diagnosed 3/7/2017 at age 48 Staging SCC HPV+ T0,N1 primary unknown PET 3/16, no activity, biopsies 3/23 benign TORS surgery identified 2mm tumor in BOT (vallecula) Cancer restaged T1, N2, M0 Begin 30 sessions of radiation (60 Gy) 6/13 Completed radiation 7/24/2017 1st MRI clear 10/23/2017!! 2nd MRI clear 10/17/2018! | | |
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