| Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 61 | Hi gang, Just got my flouride trays today. They fit fine, but are they supposed to be this flimsy? They don't seem like they will last through constant use. How long do they normally last?
04/21/17 Biopsy at ENT 04/25/17 Biopsy result SCC on left side tongue 04/27/17 CT Scans--shows shallow tumor 05/02/17 Pre-op 05/03/17 Surgery to remove tumor 05/08/17 Cancer still present 05/10/17 2nd surgery- 06/05/17 PET on 6th, RADS start on 06/20/17 07/11/17 Halfway point! 08/01/17 Last treatment 11/1/17 Cancer is back 11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft. | | | | Joined: Feb 2017 Posts: 67 Likes: 1 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2017 Posts: 67 Likes: 1 | My husband's looked flimsy but made it through treatment.
Wife to DP. DX SCC BOT 1/31/17 First treatment 2/27/2017 Cisplatin 3 times and IMRT Last treatment 4/18/2017 Clear PET 7/13/2017 PEG removed 8/4/2017 | | | | Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 61 | Thanks sooner. I was wondering.
04/21/17 Biopsy at ENT 04/25/17 Biopsy result SCC on left side tongue 04/27/17 CT Scans--shows shallow tumor 05/02/17 Pre-op 05/03/17 Surgery to remove tumor 05/08/17 Cancer still present 05/10/17 2nd surgery- 06/05/17 PET on 6th, RADS start on 06/20/17 07/11/17 Halfway point! 08/01/17 Last treatment 11/1/17 Cancer is back 11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft. | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Hi Wendy - I got my trays when I started treatment in spring 2009. I've used them every night ever since, cleaning them with a toothbrush after each use. They've held up beautifully. I do have a suggestion though: denture cleaner. I'd noticed dark spots cropping up on the trays after awhile and was initially scrubbing them with an abrasive cleaner and sponge. But when my dental hygienist pointed out that this could damage the material I began to think about another way. Can't recall where I first read about it, but now every few weeks I soak them overnight with one denture tablet and it works like a charm.
Hope your PET scan gave good results, and best of luck with the RADs. Please visit us often, we're here to help.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 61 | Thanks David2....that tip will come in handy. It has been stressful. But I'm happy to say, that the PET came out clear! Now I'm waiting on rads to start. Thanks for asking.
04/21/17 Biopsy at ENT 04/25/17 Biopsy result SCC on left side tongue 04/27/17 CT Scans--shows shallow tumor 05/02/17 Pre-op 05/03/17 Surgery to remove tumor 05/08/17 Cancer still present 05/10/17 2nd surgery- 06/05/17 PET on 6th, RADS start on 06/20/17 07/11/17 Halfway point! 08/01/17 Last treatment 11/1/17 Cancer is back 11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft. | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Great news on the PET, Wendy! Congrats. Hang in there for the rads. I recommend doing nothing but relaxing and eating between now and the 20th - all the foods you love and crave and as much as you want. As always, we're all here for you at any time.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Apr 2017 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Apr 2017 Posts: 61 | Thanks, David2...and everyone. I'm a very "worry" type person, so I have been losing sleep, over getting radiation. That being said, I am wanting to get this started and over with.
04/21/17 Biopsy at ENT 04/25/17 Biopsy result SCC on left side tongue 04/27/17 CT Scans--shows shallow tumor 05/02/17 Pre-op 05/03/17 Surgery to remove tumor 05/08/17 Cancer still present 05/10/17 2nd surgery- 06/05/17 PET on 6th, RADS start on 06/20/17 07/11/17 Halfway point! 08/01/17 Last treatment 11/1/17 Cancer is back 11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft. | | |
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