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#194474 - 05/19/17 03:14 AM Pathology results and pain management  
Joined: Apr 2017
Posts: 25
Stef H Offline
Contributing Member (25+ posts)
Stef H  Offline
Contributing Member (25+ posts)

Joined: Apr 2017
Posts: 25
San Jose, California
Hi all,
I received the pathology report from my TORS; they took 6 samples (and most were at least 2cm in size - this explains the pain!)
The samples were taken from the left palatine tonsil, glossal pharyngeal sulcus, tongue base, vallecula, oral pharyngeal wall at the epiglottic fold, and at the midline tongue base.

Here's the key info:
"Histological sections of left vallecula biopsy demonstrate tonsillar tissue with a 0.2cm focus of non-keratinizing squamous cell carcinoma...No perineural or lymphovascular invasion identified. No carcinoma is seen in the remaining biopsies" This is really good news (and time to update my signature!)

The tumor board will review the results on Monday and make a recommendation (my guess is radiation.)

A few comments on pain:
I was totally unprepared for the pain and learned today the pain will be there for 6 weeks. I am taking oxycodone (5mg) every 4 hours and gabapentin (100mg) every 8 hours and it's very painful to swallow or eat anything. Pushing through as I know hydration and nutrition are the keys to healing. Really wish I didn't have to take a narcotic.

Anyway, just wanted to share my TORS experience. It has taken nearly 2 weeks to recover.

StefH


Keep fighting friends!

Me:
"Cyst" - US, MRI, FNA Feb 2017
"Cyst" removal 3/6

SCC diagnosed 3/7 - the "cyst" was a lymph node
Staging SCC HPV+ T0,N1 primary unknown
PET 3/16, no activity
Biopsies 3/23, benign
TORS surgery completed 5/9 to remove tissues, seek primary
#194480 - 05/19/17 11:59 AM Re: Pathology results and pain management [Re: Stef H]  
Joined: Oct 2012
Posts: 807
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 807
Toronto, Canada
If you are going to have rads, chances are you will get throat pain again! Are you able to swallow with comfort right now? Maybe you would like to eat your favorite food in the interim. The treatment for head and neck cancer does seem like a never-ending cycle of pain. In preparation for rads, make sure you get all your teeth checked and any problems dealt with. It will be so much harder to do work on the teeth post radiation.

Do let us know what the tumor board decides and if you need further treatment.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#194505 - 05/22/17 02:21 AM Re: Pathology results and pain management [Re: gmcraft]  
Joined: Apr 2017
Posts: 25
Stef H Offline
Contributing Member (25+ posts)
Stef H  Offline
Contributing Member (25+ posts)

Joined: Apr 2017
Posts: 25
San Jose, California
Will do! Had a dental appointment before surgery. May have a second since they really beat up stuff in there.

I wish I would not need radiation but they set up an appointment to discuss options on Thursday smirk

I realize I need to changed my mindset and be grateful for access to treatment.


Keep fighting friends!

Me:
"Cyst" - US, MRI, FNA Feb 2017
"Cyst" removal 3/6

SCC diagnosed 3/7 - the "cyst" was a lymph node
Staging SCC HPV+ T0,N1 primary unknown
PET 3/16, no activity
Biopsies 3/23, benign
TORS surgery completed 5/9 to remove tissues, seek primary

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