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Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Everyone is different. Some patients can remain stable for a couple years while others have the cancer grow very quickly in a short amount of time. Remember as of right now, you are ok so do your very best to avoid becoming so stressed out you cant sleep. I do understand what you're going thru, I went thru it too and its not fun at all. Stress on patients is not good, it makes everything so much harder than it has to be.

Hang in there!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2017
Posts: 61
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2017
Posts: 61
I also felt swollen lymph nodes before my CT, but when I got the results back they were clean. Christine is such a help. She has calmed my nerves and helped me to think straight. Good Luck Princesstwinkle, love the handle, by the way. I'm rooting for you! Just had my 2nd tumor removal in 1 week, and im still up and about, not talking, but still laughing and living.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
Joined: Apr 2017
Posts: 61
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2017
Posts: 61
Also, I too...waited far too long to see someone...It was October last year. I was worried, but didnt have money. No insurance. So stupid me...I wanted to get cancer policies just in case, so I did and waited another month for them to take effect. Then I decided to see the Doctor, and it was Cancer...I should not have waited so long. It has only been 17 days since I found out. Im already 2 surgeries in. I dont know how aggressive the Cancer is, but luckily I found a doc that is taking things serious and wants to do them quickly. He says since I waited so long, he doesn't want it to get any worse. Im praying for you. All these people are here for you.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.
Joined: May 2017
Posts: 7
Member
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Member

Joined: May 2017
Posts: 7
Thank you very much! Really nervous about tomorrow appointment. Don't know what will happen. Try to get some sleep tonight.

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