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| | Joined: May 2017 Posts: 10 Member | OP  Member
Joined: May 2017 Posts: 10 | Hello,
I do not have an Oral Cancer diagnosis at this point. I am at my witts end. My "mystery illness" began in February with an awful sore throat and hoarseness. I have had numerous doctors visits, have been on several antibiotics as well as prednisone. I won't bore you with all the specifics of what each medical provider "thought" I had. At any rate, I have also had a head/neck MRI which revealed thyroid nodules. ENT sent me for ultrasound guided biopsy which came back negative. Primary care doctor then sent me for a chest CT as she is now "concerned" something "bad" could be going on due to my previous and family history of Melenoma. Got the results of chest CT today which were normal. The next step she would like me to do is have an abdominal/pelvic CT.
Why am I in THIS forum you wonder.....well, my voice is still hoarse, since February i have had my "normal" voice for 1 week. I do have some red spots on the side of my tongue...they are light, but there. My submandibular gland has been killing me through this whole ordeal. My ear on the same side has also been painful throughout this as well. The reason the head/neck MRI was ordered was because the side of my face was numb/tingly. This has continued as well. Today it feels like something is draining from my tongue and making my mouth taste awful. I do not have any lumps/bumps on the floor of my mouth.
I am concerned about cancer of the tongue. I would appreciate any an all suggestions/opinions/recommendations.
Thanks in Advance
MrsSmitty
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF, Mrs Smitty. I hope you do not have a need for our services!. My suggestion would be to go to an ENT who specializes in treating oral cancer patients. You do not want to get an ENT who primarily puts tubes in kids ears as they wouldnt have the correct training to recognize your symptoms could mean you do have something serious going on. Another idea would be to do a search and maybe you will get lucky to find a dental office who is still doing free oral cancer screenings. April is oral cancer awareness month and OCF recruits hundreds of dental offices all over the US to provide free screenings. Heres our search event page. Best wishes with everything!!! OCF Main Site --- Events
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2017 Posts: 10 Member | | OP Member
Joined: May 2017 Posts: 10 | Thank you for your response, ChristineB.
Do you have any recommendations of how to find an ENT who specializes?
MrsSmitty
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