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#194027 - 03/14/17 09:33 AM Therapeutic Neck and Shoulder stretches  
Joined: Feb 2007
Posts: 786
misskate Offline
"Above & Beyond" Member (500+ posts)
misskate  Offline
"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 786
San Francisco,CA
Hey everybody! So I am 10 years out and I still have a tenderness, pain and stiffness in my neck where I had the neck dissection.

I've been doing some massage with cranial sacral therapy and also have been making a big effort to stretch daily. It's made a big difference in my range of motion and relief of pain. The don't know why I haven't done it earlier! I have fallen off my weekly yoga because I am just really busy right now w work and my little boys but even dedicating 10 - 15 mins a day really targeting these specific areas is making a big difference for me 😌

Here are is a link to one I did tonight that felt amazing. All the ones with the yoga blocks feel sooo relaxing and good and really get deep into the muscles that are our trouble areas so I thought I would share them.

http://pin.it/MTkVW70
http://pin.it/jrPIU5T

I will be posting more on my Pinterest page as I come across them.

yoga for neck and shoulders-- http://pin.it/3atyMCh


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
#194032 - 03/14/17 03:26 PM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Sep 2016
Posts: 104
bjmpittsburgh Offline
Senior Member (100+ posts)
bjmpittsburgh  Offline
Senior Member (100+ posts)

Joined: Sep 2016
Posts: 104
misskate -

Try stretching your neck while taking a hot shower. That seemed to work the best for me. (Also a great way to start the day!)


1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing

#194033 - 03/14/17 04:20 PM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Jun 2007
Posts: 9,714
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,714
PA
Always great to see your posts, Kate smile Im so happy to hear you are doing so well with moving on since your battle 10 years ago. You are an inspiration to all of us who have gone thru treatments and learned to live with the after effects and late effects of OC and its brutal treatments. I hope you can make time to stop by more frequently.

Thank you for sharing your yoga poses with us smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#194187 - 04/19/17 02:20 PM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Apr 2017
Posts: 1
MtownCyclone Offline
Member
MtownCyclone  Offline
Member

Joined: Apr 2017
Posts: 1
Thanks for this! I just joined to see if anyone else was having pain in their dissection area. I'm 7 months post treatment and about 1 year since last surgery. My neck has gotten progressively more sore around the dissection scar. I was starting to worry about recurrence. Should I be?

#194188 - 04/19/17 04:27 PM Re: Therapeutic Neck and Shoulder stretches [Re: MtownCyclone]  
Joined: Sep 2016
Posts: 104
bjmpittsburgh Offline
Senior Member (100+ posts)
bjmpittsburgh  Offline
Senior Member (100+ posts)

Joined: Sep 2016
Posts: 104
MtownCyclone -

20 years out from neck dissection. The stiffness doesn't go away, you mostly just learn how to deal with it. I stretch everyday to loosen up the muscles. PT and acupuncture help somewhat also.

After completing my treatments in 97, my ENT said then that when cancer occurs in younger patients, (I was 31), oncologists were seeing a recurrence cycle between 15 and 20 years. He stressed to me the importance of monitoring my head and neck areas for any changes. [My recurrence was diagnosed17 years later.]

Just my history.......

You are your best advocate. You know what is right and when something is wrong. When its wrong, don't delay in getting yourself in front of the right ENT.

Good Luck and I hope that your current worries are just nerves and not something more troubling


1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing

#194189 - 04/19/17 05:11 PM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Oct 2012
Posts: 863
gmcraft Online sad
"OCF Canuck"
gmcraft  Online Sad
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 863
Toronto, Canada
Hi Motown Cyclone,

Welcome to the forum. If you could briefly introduce yourself under the thread "Introduce Yourself" you may get more response from the members. This is an older post and your question may be overlooked by others who have information to share.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#194698 - 06/21/17 09:26 PM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Apr 2016
Posts: 57
msweet2995 Offline
Supporting Member (50+ posts)
msweet2995  Offline
Supporting Member (50+ posts)

Joined: Apr 2016
Posts: 57
Florida
Hi my name is Michele and it has been since 2009 since Radiation and this month noticed and increased stiffness in my neck where the scar is, sometimes I feel like choking. I have called my oncologist and he cannot see me until July 12th and trying to get in touch with the radiation oncologist that did the radiation. Very happy I am alive but very sad about the new problems I am having with my neck. Thanks to this site I have found out many things that a doctor fails to mention.


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
Radiation Fibrosis of the jaw and neck, vocal cord dysfuntion and diced food diet
#194703 - 06/22/17 01:38 AM Re: Therapeutic Neck and Shoulder stretches [Re: misskate]  
Joined: Jul 2012
Posts: 2,993
PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 2,993
NYC
You're doing the right thing seeing your doctors for any problems lasting longer than two weeks, but I often waited even less than that. Hopefully, it's something minor, that can be helped with physical therapy or specific stretching exercises. You mention stiffness where the scar is, so I assume you may have had surgery? If so, you may want to add a visit with your ENT too.

I'll be starting PT soon myself for a few ailments.

Good luck


10/09 T1N2bM0 Tonsil
11/09 TPF IC 6 Months Hosp Tx Stopped
01/11 35 IMRT 70Gy 7 Weeks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap Graft IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotere Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy
12/13 25 Proton Therapy 50Gy 6 weeks Carboplatin
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Segmental Mandibulectomy Fibular Free Flap
04/17 Regraft hypergranulation Donor Site
06/17 Myocardial Infarction







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