| | Joined: Feb 2017 Posts: 6 Member | OP  Member
Joined: Feb 2017 Posts: 6 | Not sure if this is the best forum for this post, so let me know if I should re-post somewhere else.
I am curious if anyone is enrolled in the chemoprevention study with Dr Shin at Emory University? I am meeting with Dr Shin on Thursday to learn more about the study and would appreciate hearing from anyone that is/has participated.
Thanks.
2/2/17 biopsy of lesion on right underside of tongue
2/7/17 biopsy results showed SCC
2/8/17 met with surgeon at Emory otolaryngology
2/9/17 CT scan of head and neck
2/14/17 Scan results negative, small asymmetrical node on R
3/17/17 Partial glossectomy, removed neck nodes on R side
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | As mentioned, I know of Dr. Dong Moon Shin through my own research, and have not gone there as I'm in NYC, and was treated there. I have read a number of years ago about his research into chemoprevention since I had a number of recurrences, and was interested. Two that I recall were Green Tea and Erlotinib (Tarceva). My oncologist looked into Tarceva, and said it wasn't for me. After I was treated at another cancer center by a different Oncologist, I asked again about Tarceva in chemoprevention, and was told that Tarceva was found not to work, at least in that. That was about 4 years ago, so things could have changed, different dosages, combinations, and heard of other ideas in chemoprevention, but haven't looked into it in a while. Here is an article on Tarceva in chemoprevention, which was disappointing. http://www.medscape.com/viewarticle/853961I hope this helps.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you for bringing this to our attention. This may be helpful to other members. Im sorry but at this time I have not heard about this study. Physicians who are looking for study participants for legitimate studies to learn more about head and neck cancer must first get approval from either myself or Brian. If your physician is seeking more participants please have him contact me. Im sending my email to you in a PM.
Thank you!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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