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| | Joined: Feb 2017 Posts: 67 Likes: 1 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Feb 2017 Posts: 67 Likes: 1 | My husband has been DX with SCC BOT. We just completed our fourth week of Cisplatin and IMRT. Still standing but it has been a rough road so far. Last treatment is set to be April 17 unless he has a treatment interruption. We are getting better at managing side effects so I'm feeling more optimistic we might make it. He's had some problems with aspirating at night so we've ordered the Medcline Sleep System. Just wondering if anyone else has used it.
Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! You're in the very best place to get info and support to help both you and your husband get thru treatments and recovery. Read both here and on the main OCF site to educate yourself about oral cancer so you can become a strong advocate for your husband.
I havent heard of the sleep system you mentioned. Does your husband use a feeding tube? If so then he needs to sleep on an incline or yes, aspiration can become a big problem. I have just raised the head of my bed a few inches (put 2 bricks each side under the legs of the top of my bedframe) and used 3 pillows as well.
Feel free to ask questions. We also have a great search function (white box near the top right of any page) where you will instantly find answers to many questions. Dont forget to take good care of you too, caregiving can be a tough job.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Welcome Sooner, I think this is the sleep system being mentioned in an article I have from Cleveland Clinic from 2014 about Acid Reflux in which the developing doctor of the product said it can help reduce GERD. Interesting also is that he said sleeping on the left side of the body can reduce acid reflux too, which product helps with. Personally, I have an electric incline bed for years, and take omeprazole for Barrett's Esophagus, a severe form of acid reflux or GERD. I no longer sleep on my side since a recent surgery with a titanium chest plate, and often sleep on a recliner that I'm more confirrcje with. https://health.clevelandclinic.org/...ed-body-pillow-prevent-your-acid-reflux/Hope this helps
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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