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#193703 - 01/07/17 11:15 AM Re: New from India [Re: Vishwambhar]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
welcome to OCF! Avoid crowds and public places as your resistance is low. I know its hard right now but you MUST take in at least 2500 calories and 48 oz of water daily. If u can do more it will help you to get thru this easier.

Hang in there! We will help you.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#193849 - 02/07/17 08:51 AM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2016
Posts: 11
Vishwambhar Offline
Member
Vishwambhar  Offline
Member

Joined: Oct 2016
Posts: 11
Thanks alot for support.

Completed chemo & radiation on 27 Jan 2017.Removed Feeding tube.Now slowly i have started taking liquids from mouth.Voice is getting clear slowly and mucus secretion getting normal.Taking calories as suggested.


Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
#193851 - 02/07/17 09:38 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2012
Posts: 854
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 854
Toronto, Canada
Sounds like you are recovering well. Well done!


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#193853 - 02/08/17 05:11 PM Re: New from India [Re: Vishwambhar]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
Thanks for checking back with an update!

Recovery can be a frustrating time, it can take many months. It can be difficult with having ups and downs and some setbacks too. Radiation continues to work for several weeks after the treatments have finished.

Im glad you are focusing on your intake! That will have a huge impact on getting you thru your recovery easier.

Hang in there! The worst is behind you.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#194044 - 03/18/17 05:57 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2016
Posts: 11
Vishwambhar Offline
Member
Vishwambhar  Offline
Member

Joined: Oct 2016
Posts: 11
Hello everyone,

I feel cold and little bit shivering, don't know why but from inside I feel quite warm. I don't know why but this could be due to radiation or what, please suggest if someone had similar type of problem earlier


Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
#194045 - 03/18/17 06:09 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2012
Posts: 854
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 854
Toronto, Canada
You only finished your treatments less than two months ago. You may be feeling cold/shivering because your body has been weakened by the treatments and your energy level is low. I would suggest that you bring this up with your doctor if you continue to feel this way. Your doctor would be the best person to pinpoint the problem and suggest remedies.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#194046 - 03/18/17 07:31 PM Re: New from India [Re: Vishwambhar]  
Joined: Jun 2007
Posts: 9,676
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,676
PA
Since you recently finished your treatments it could be related. Ive seen other OC patients have circulation issues as a side effect from having chemo. I dont know if you had chemo or which ones can affect some patients circulation. It could also be an unrelated problem like being diabetic or from taking certain medications or maybe the flu? I suggest following up with your regular family doctor. They should know you the best and know your medical history and what medications you take.

Best wishes with your continued improvements with your recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#194049 - 03/21/17 04:14 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2016
Posts: 11
Vishwambhar Offline
Member
Vishwambhar  Offline
Member

Joined: Oct 2016
Posts: 11
Thanks for supporting me.

Today I met with my doctor, he told me that I got infection in mandible (surgery part) and because of that I got fever and prescribed me some antibiotics and told me to meet him in coming Saturday again.


Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
#194050 - 03/21/17 04:36 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2012
Posts: 854
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 854
Toronto, Canada
I'm glad you saw your doctor and found out why you were not feeling right.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#194185 - 04/19/17 12:38 PM Re: New from India [Re: Vishwambhar]  
Joined: Oct 2016
Posts: 11
Vishwambhar Offline
Member
Vishwambhar  Offline
Member

Joined: Oct 2016
Posts: 11
Hope everyone doing good!

It is almost 3 months from my last radiation.Trying to recover from infection still on antibiotics.Meeting my surgeon every week for this,he told me not to worry it will heal after some time.No saliva secretion due to which chewing is not possible.Want to gain some weight badly as i lost huge one.Taking semisolid fluids by mouth no feeding tube, planning to do some physical exercise like cycling which is my favourite.

Someday i feel negative, i know i have to be positive, even though.

Now do i have to go for a PET scan ?any suggestions please

Thanks alot for your kind support and wishes.


Vishwambhar

SCC,Left mandibles
Stage:T2N2M0
Mandibulectomy on 17/10/2016
radical neck dissection
Cisplatin/5FU -3 cycles
35 radiation completed on Jan 2017
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