Patient / Survivor Header
Topic Options
#193706 - 01/09/17 02:25 PM Mickey Low Profile Button
Johnnie Offline
Member

Registered: 01/28/15
Posts: 10
I replaced my regular G tube with a low profile Mickey Button in June of last year. My doctors warned me against the low profile saying it was only for children and that I would have lots of problems with it. I researched it before asking to change and they were not correct. It has been a wonderful change. It allows me much more freedom. I can even swim with a patch. Golf is more fun, lying in bed is more comfortable. I am very careful what goes into this tube but then I was before. It is a 20 French just like my old one. Go to Mickey website and take a look.
_________________________
Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo

Top
#193707 - 01/09/17 03:24 PM Re: Mickey Low Profile Button [Re: Johnnie]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9371
Loc: PA
Thanks Johnnie! Whoever told you it was only for kids is wrong, adults are ok to use the Mickey. We have several members over the years who have gone the Mickey route with success. Ive considered it myself. Many patients arent adept at their own care enough to manage doing the tube exchange which is why I think patients are steered away from it.


PS... Congrats on your 15 years post rads cancerversary smile
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#193708 - 01/10/17 08:04 AM Re: Mickey Low Profile Button [Re: Johnnie]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 981
Loc: New Zealand
Hi Johnnie,
My husband used the Mickey button for 4 years. It is far superior to the long pendulous type tube. It would take me less than 10 seconds to change the Mickey button . I encourage others I meet on this journey to ask for the Mickey.
Best wishes,
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2016 4years post surgery .NED !

Top
#193709 - 01/10/17 05:27 PM Re: Mickey Low Profile Button [Re: Johnnie]
bjmpittsburgh Offline
Contributing Member (25+ posts)

Registered: 09/12/16
Posts: 48
Johnnie -

The low profile MIC Button is so much better than the standard G-tube.

I've been using the product for 2 1/2 years with only a few very minor issues.

In my opinion, its the best way to go for long term feeding assistance
_________________________
1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Trisimus
Pump Feed
Permanent Issues with speech and swallowing


Top
#193711 - 01/11/17 10:44 PM Re: Mickey Low Profile Button [Re: Johnnie]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9371
Loc: PA
I have a question to all the Mickey users...

Where is your Mickey located? If going from a PEG tube to the Mickey is placed in the same tube site? For some odd reason I was always under the impression the PEG or J/G tubes were located near the center of a patients abdomen. I dont know why but I always thought of the Mickey located slightly off center, more like a couple inches to the side.

Thanks in advance for any replies smile
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#193714 - 01/12/17 06:02 AM Re: Mickey Low Profile Button [Re: Johnnie]
Jo in NC Offline
Supporting Member (50+ posts)

Registered: 07/07/16
Posts: 73
Loc: North Carolina
My peg g tube is located high but to the left of middle. I did ask the surgeon about placement and he stated it is different for each person as it depends on where the stomach is located. Makes me wonder if my heart is also off center ! LoL. Just kidding !
_________________________
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side of neck.
March 2015 Scan and biopsy confirmation
March 2015 Port and G tube placement and 10 teeth removed.
July 2015 completed 5 chemo and 35 radiations
Sept 2015 Cat Scan showed all clear !
July 2016 G tube and port still in place
I have had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries in the past 3 months with over 100 stones still there !


Top
#193715 - 01/12/17 07:23 AM Re: Mickey Low Profile Button [Re: Johnnie]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 981
Loc: New Zealand
Hi Christine, both these tubes are placed within the stomach. They are both PEG tubes, just differing kinds. Kris's were within an inch of each other.
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2016 4years post surgery .NED !

Top
#193753 - 01/16/17 02:58 AM Re: Mickey Low Profile Button [Re: Johnnie]
Uptown Offline
Patient Advocate (old timer, 2000 posts)

Registered: 12/08/03
Posts: 2593
Loc: Dallas
Both of my Mic Key buttons were put in the same hole as my dangler, the second one placed 3 weeks after the dangler was placed to allow the stoma to develop.
_________________________
SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Diagnosis Post Radiation Lower Motor Neuron Syndrome 3/08.
Diagnosis Cervical Spinal Stenosis 01/11
Diagnosis Cervical Myelitis 09/12
Diagnosis Thoracic Paraplegia 10/12
Diagnosis Dysautonomia 11/12
Hospice care 09/12, off 01/13.
Diagnosis PLS 02/13
Diagnosis COPD 01/14
Diagnosis Intermittent CHF 6/15
Feeding tube NPO 03/16
Living life LARGE with no quit in this guy!

Top

Support OCF


Help OCF

Shop Amazon and Help OCF

Who's Online
1 registered (gmcraft), 14 Guests and 3 Spiders online.
Key: Admin, Global Mod, Mod
Forum Stats
11,028 Registered Members
23 Forums
16,792 Topics
188,911 Posts

Most users ever online: 306 @ 08/21/16 04:53 PM
Top Posters
ChristineB 9371
davidcpa 8311
Cheryld 5260
Brian Hill 4734
Gary 3552
Newest Members
BrandiH25, WFSBHC, Javamom66, Yorky46, Lindy in Sydney
11027 Registered Users
Brag Box