| | Joined: Jan 2017 Posts: 2 Member | OP  Member
Joined: Jan 2017 Posts: 2 | Hi my name is Linda I live in Toronto Canada. I had cancer of the tongue, total removal Jan 14 2016. My question is, April 2017 is when they will rebuild. I'm curious if anyone can tell me about how they were able to eat after reconstruction and if they still have a feeding tube . I have read about Kate Brown amazing woman . I miss eating lol
Linda
Linda Solarz
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Linda! Ive sent you a private message (PM). Please look for the tiny flashing envelope and click on it. You probably will want to send Miss Kate a pm yourself. Instructions are included in the link Ive sent you.
Thank you!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Linda,
I am also in Toronto. Where are you being treated? Is it Princess Margaret?
Regarding your questions about swallowing, the best person to help you with it is a speech and language pathologist (i know it sounds odd but they are the ones who have expertise in swallowing issues.). If you arewith PMH, you might have to go to Toronto General Hospital or Toronto Western Hospital to see the SLP. Talk to your medical team as soon as you can as it takes something like eight to ten weeks to get an appointment to see an SLP. At the same time, you will see a dietitian who will give you guidance regarding how you can maintain your calorie intake.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | One more thing. If your time is flexible, as the medical team (who will make the appointment for you) to put you also on the cancellation list. That way, you may be able to get in sooner.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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