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#193495 - 12/04/16 12:59 AM National Comprehensive Cancer Network Guidelines
Uptown Offline
Patient Advocate (old timer, 2000 posts)

Registered: 12/08/03
Posts: 2597
Loc: Dallas
The NCCN has a pocket guide version of the NCCN practice guidelines for Head and Neck Cancer that was just released in October. They are free and you can order up to 5. They are currently out of stock. This link should work for ordering.

http://promail.nicelines.com/v5fmsnet/Oe...=NCCN01&v=9
_________________________
SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Diagnosis Post Radiation Lower Motor Neuron Syndrome 3/08.
Diagnosis Cervical Spinal Stenosis 01/11
Diagnosis Cervical Myelitis 09/12
Diagnosis Thoracic Paraplegia 10/12
Diagnosis Dysautonomia 11/12
Hospice care 09/12, off 01/13.
Diagnosis PLS 02/13
Diagnosis COPD 01/14
Diagnosis Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
Living life LARGE with no quit in this guy!

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#193550 - 12/09/16 06:12 PM Re: National Comprehensive Cancer Network Guidelines [Re: Uptown]
donfoo Offline
Patient Advocate (1000+ posts)

Registered: 01/09/13
Posts: 1291
Loc: CA - SF Bay Area
Thanks Ed. Saw your post of FB and pulled a pdf copy. did not know there were paper guides available to the public, especially for free.
_________________________
Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com

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#193552 - 12/09/16 06:58 PM Re: National Comprehensive Cancer Network Guidelines [Re: Uptown]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2935
Loc: NY
I saw it about a month ago, and were not available then, but doubt I would order one anyway since I have the digital NCCN Guidlines on my laptop, iPad and as an App on my iPhone, for free also, if you don't want to wait.
_________________________
10/09 PET T1N2bM0 Tonsil
11/09 Taxotere Cisplatin 5-FU IC Hosp 6 Months
07/10 PET
08/10 PET
01/11 35 IMRT 70Gy
06/11 30 HBO
07/11 PET
08/11 RND PNI
04/12 PET
06/12 SND PNI LVI
07/12 CT
08/12 RND Pec Flap Graft, IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotete Erbitux
03/13 PET
08/13 PET
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy
12/13 25 Proton Therapy 50Gy 6 weeks Carbo
06/14 PET
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Segmental Mandiblectomy Fibular Free Flap







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#193567 - 12/10/16 05:35 PM Re: National Comprehensive Cancer Network Guidelines [Re: Uptown]
Susan2992 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/04/06
Posts: 734
Loc: Pennsylvania
Paul, I just downloaded the NCCN Guidelines for Patients for iPhone. There were a total of 29 guidelines included, but I didn't see one for Head and Neck Cancer. Is this the same app you downloaded?
_________________________
Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2017

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#193570 - 12/11/16 12:16 AM Re: National Comprehensive Cancer Network Guidelines [Re: Uptown]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2935
Loc: NY
I don't read watered down patient material lol. It's the "Clinical Practice Guidelines" I have. In any case, I'm surprised they don't have patient head and neck cancer info? The Clinical Practice Oncology Guidelines are under "NCCN Guidelines for Smartphone" in the App Store. You may have to go to edit library to select the ones you want, then sync guidelines, which will update your list. Can deselect the same way in reverse.

Hope this works.
_________________________
10/09 PET T1N2bM0 Tonsil
11/09 Taxotere Cisplatin 5-FU IC Hosp 6 Months
07/10 PET
08/10 PET
01/11 35 IMRT 70Gy
06/11 30 HBO
07/11 PET
08/11 RND PNI
04/12 PET
06/12 SND PNI LVI
07/12 CT
08/12 RND Pec Flap Graft, IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotete Erbitux
03/13 PET
08/13 PET
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy
12/13 25 Proton Therapy 50Gy 6 weeks Carbo
06/14 PET
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Segmental Mandiblectomy Fibular Free Flap







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