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#193541 - 12/09/16 03:34 AM Re: Recurrence with spots on lungs [Re: LilyFoo]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9435
Loc: PA
Sheryl, I am so very sorry to hear of Charles passing away. He certainly went thru so many very difficult years. Thru it all you stayed by his side continually searching for things to help make everything easier for him.

Thank you for sharing his obituary. Charles sounds like he lived a full life. He had many interests, including glass. My son also works with glass (when he has time) and makes all kinds of things. Down the road after everything settles down I'd love to hear about his glass work.

May Charles rest in peace free from pain and illness. In time I hope the happier times you shared can bring you comfort.

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

#193542 - 12/09/16 04:51 AM Re: Recurrence with spots on lungs [Re: LilyFoo]
donfoo Offline
Patient Advocate (1000+ posts)

Registered: 01/09/13
Posts: 1291
Loc: CA - SF Bay Area

I am very sorry to hear about the death of your husband. He went through so much, he is now free of all the suffering he endured for so long. Thank you for sharing with us here. don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at

#193546 - 12/09/16 05:34 AM Re: Recurrence with spots on lungs [Re: LilyFoo]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 995
Loc: New Zealand
Oh Sheryl, I am so sorry to read this update. Never forget that you have been a wonderful Caregiver and advocate for Charles.
I'm sure you have a lifetime of wonderful memories. Take care.
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

#193549 - 12/09/16 05:08 PM Re: Recurrence with spots on lungs [Re: LilyFoo]
bjmpittsburgh Offline
Supporting Member (50+ posts)

Registered: 09/12/16
Posts: 57
So sorry for your loss.
1997 SCC Tumor on tongue - Partial Glossectomy
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Glossectomy
6 weeks chemo and radiation
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-glossectomy
Free Flap reconstruction from thigh
PEG Tube inserted
6 weeks radiation
Pump Feed
Permanent Issues with speech and swallowing

#193553 - 12/09/16 10:16 PM Re: Recurrence with spots on lungs [Re: LilyFoo]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2935
Loc: NY
I'm sorry for your loss, Sheryl. My condolences to you and your family.
10/09 PET T1N2bM0 Tonsil
11/09 Taxotere Cisplatin 5-FU IC Hosp 6 Months
07/10 PET
08/10 PET
01/11 35 IMRT 70Gy
06/11 30 HBO
07/11 PET
08/11 RND PNI
04/12 PET
07/12 CT
08/12 RND Pec Flap Graft, IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotete Erbitux
03/13 PET
08/13 PET
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy
12/13 25 Proton Therapy 50Gy 6 weeks Carbo
06/14 PET
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Segmental Mandiblectomy Fibular Free Flap

#193558 - 12/10/16 04:47 AM Re: Recurrence with spots on lungs [Re: LilyFoo]
Susan2992 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/04/06
Posts: 734
Loc: Pennsylvania
I'm very sorry to hear of your husband's passing. My condolences to you and your family.

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2017

#193562 - 12/10/16 01:52 PM Re: Recurrence with spots on lungs [Re: LilyFoo]
Jo in NC Offline
Supporting Member (50+ posts)

Registered: 07/07/16
Posts: 80
Loc: North Carolina
Dear Sheryl, I am very sorry to hear of your loss. I know you have many beautiful memories of you and Charles. You were an amazing caregiver, always by his side. Sending hugs to you. Jo
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side of neck.
March 2015 Scan and biopsy confirmation
March 2015 Port and G tube placement and 10 teeth removed.
July 2015 completed 5 chemo and 35 radiations
Sept 2015 Cat Scan showed all clear !
July 2016 G tube and port still in place
I have had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries in the past 3 months with over 100 stones still there !

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