| | Joined: Feb 2016 Posts: 7 Member | OP  Member
Joined: Feb 2016 Posts: 7 | Saw the ENT yesterday at University of Mississippi due to some ongoing pain in my sinus and upper maxilla area. While there I told him I had been having a bit of a sore throat. He decided to run the scope down my nose and into my throats area. He advised me he observed some leukoplakia on my left vocal cord. He told me this was a precancerous condition and that he would check it again in 6 months. Also started me on a Prilosec. Does this sound like a correct approach? To say I am a little nervous is an understatement.
44 year old female. Smoked for 24 years. Quit for a year but fell off the wagon for a week.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I think if you were ok with what the ENT told you and didnt mind waiting 6 months to get rechecked you wouldnt have posted here. I agree!!! Experienced physicians can give you an educated guess as to what a lesion probably is but without a biopsy they cant be 100% certain. If you dont feel comfortable with the ENT who examined you then go for a second opinion. A second opinion is always a good idea, it sure cant hurt in your situation. Leukoplakia does NOT always turn into cancer. Ive seen many patients come thru here with leukoplakia that it has never turned into cancer. If its removed, it often returns to the same area. Heres a link with more info about leukoplakia and other mouth lesions. Hopefully whatever you have is not cancer!!! Good luck!!! Main OCF site... Premalignant and other lesions
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2016 Posts: 7 Member | | OP Member
Joined: Feb 2016 Posts: 7 | Thanks Christine. My sister works at Roswell Park in Buffalo, NY, she is flying me up to see the ENT there for a second opinion on the 16th of this month.
44 year old female. Smoked for 24 years. Quit for a year but fell off the wagon for a week.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Best wishes with your appointment!!! Please keep us posted with how you make out.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I'm sure you'll be in good hands. Roswell Park Cancer Institute is top rated, and one of the member Institutions affiliated with the NCCN, National Comprehensive Cancer Network.
Good luck
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jul 2016 Posts: 85 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2016 Posts: 85 | How did your appointment in NY go ? Thinking about you. Please let us know how you are doing.
Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !
*** Update... Jo passed away 12/20/17 ... RIP Jo ***
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