| | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2009 Posts: 132 | Hi, all! It's been seven years since I had my palatectomy and maxillectomy. I have been cancer-free since then. Recently, I have been dealing with sores on the tongue, which when biopsied showed dysplasia. My tongue is incredibly painful -- enough so that I don't want to eat -- so my doctor prescribed Magic Mouthwash. It seems to last only about 1 hour, but the directions say to use every 4 hours. Can I use it more often than directed???? Help!
Chrissy
Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Ive used Magic Mouthwash quite often while I was going thru rads. What I remember was I used it a few minutes before I tried to eat. Its a very temporary numbing swish and spit medication that is made up of not always the same ingredients. Mine was maylox, benedryl and lidocaine. Some formulas contain nystatin (medicine that works well on thrush or fungal infections). Ive heard of other combinations of formulas too.
I suggest to call your doctor and ask if its ok to use it as needed. Your doc would know which ingredients are ok to use more than every 4 hours. Maybe your doc could prescribe you some pain meds to help combat the pain you are having?
I hope you have some relief soon. Mouth pain is the worst! Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2016 Posts: 8 Member | | Member
Joined: Aug 2016 Posts: 8 | I am just looking around at mouth sores and treatments, as I have just started this journey in 2016. I see you started posting in 2009, and this mouth sore issue is from Aug 2016.
Is this just starting 7 years later? Or has this been going on for 7 years?
Thank you
4/1/16 Sore throat wont go away with meds and testing negative for HPV, dont drink or smoke, no family history
4/19/16 CAT/CT
4/28/16 Left Lymph Node biopsy, positive for SCC
5/24/16 SCC stage III Lymph node, left tonsil, base of tongue
6/6/16 TORS surgery
6/10/16 RND
7/1/16 RO
8/2/16 RT
| | | | | Joined: Aug 2016 Posts: 8 Member | | Member
Joined: Aug 2016 Posts: 8 | I am just looking around at mouth sores and treatments, as I have just started this journey in 2016. I see you started posting in 2009, and this mouth sore issue is from Aug 2016.
Is this just starting 7 years later? Or has this been going on for 7 years?
Thank you
4/1/16 Sore throat wont go away with meds and testing negative for HPV, dont drink or smoke, no family history
4/19/16 CAT/CT
4/28/16 Left Lymph Node biopsy, positive for SCC
5/24/16 SCC stage III Lymph node, left tonsil, base of tongue
6/6/16 TORS surgery
6/10/16 RND
7/1/16 RO
8/2/16 RT
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