| | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 55 | It's so great to hear your surgery went well and your recovery is progressing. And the news that chemo is optional makes me feel like you have a really good result here. Radiation ain't no picnic -  - so I'll echo Neicy's hope that you can eat a lot and build yourself up for that. We'll be here to support you all the way!
Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear
| | | | | Joined: Apr 2016 Posts: 16 Member | | OP Member
Joined: Apr 2016 Posts: 16 | Thank you! The chemo Dr. said no chemo! But I do have to do 30 rounds of radiation and I signed up for a clinical trial that is randomized for the addition of eurbitux to radiation. It's supposed to be a lighter form of chemo. We shall see! I pray for the best always! Thank you for you reach out!
CA patient age 30
Stage 3 OC
Surgery Partial glossectomy 4/14/16
Surgery on neck 1 lymph infected
Pathology tests show intermediate risk
Radiation starts soon
Chemo suggested but not mandatory
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | The chemo you are getting is Erbitux or AKA cetuximab. Heres some more info that you may find interesting... Targeted and Biological Therpies from main OCF site If you havent already had a full blood panel including thyroid (men also need testosterone levels) you should have this done prior to starting rads. You also should see a dentist for a good check up, cleaning and to get flouride trays started. If you havent already had enough things on your plate, this is also the best time to start making your intake your primary focus. Every single day you should take in a minimum of 2500 calories and 48-64 oz of water. If you can do more then that will only help you get thru it easier. A cancer patient burns thru calories much faster than a person without cancer. Taking in 3000 or even 3500 calories daily is not too much, especially if you are on the slim side. Losing weight for many is a welcome side effect but its also a dangerous signal that the patient isnt taking in enough and that they are headed for trouble. Older members have seen me nag and nag about intake for years. I know what Im talking about as I was a horrible patient and wouldnt listen, I preferred to stay in bed and sleep. This ended up landing me in the hospital a few times for malnutrition and dehydration. Please do better than I did and push yourself to eat and drink! Plus, your sense of taste will change, swallowing may become difficult during rads so eat your favorites now so you dont go into this with any cravings. Wishing you all the very best with your continued recovery and your upcoming treatments. Dont be afraid to stop in often and lean on us, we are here to help make this easier for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2016 Posts: 11 Member | | Member
Joined: Aug 2016 Posts: 11 | Hi, Angie, I'm new here and was reading through this thread, and wondering how you're doing! | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Winter, Angie has not been on the OCF forum since May 17th. At that time she was starting rads in 2 weeks. With most patients having an average of 6 wks rads, she should be about a month into her recovery right about now. Hopefully no news is good news and Angie is doing well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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