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#192675 07-03-2016 11:05 AM
Joined: Jan 2015
Posts: 2
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Joined: Jan 2015
Posts: 2
Hi everybody,
Its been 10 years now that I had a tumour removed from my jaw and replaced with bone from my hip area.
Although I still have great difficulty with chewing and swallowing due to severe jaw cramps & spasms, I am still having issues with my mobility. If I walk for a great length, my hip area starts to throb & ache, It also starts to ache when I'm sat for too long.
Does anybody else experience similar after all this time?

Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF, Craig!. Congrats on your 10 years being cancer free!!!! Im very sorry to hear of your continuing issues with eating and mobility. I havent heard much about mobility issues after the initial long recovery.

Did you have chemo and radiation after your big surgery?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2015
Posts: 2
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Joined: Jan 2015
Posts: 2
Hi Christine, Thanks very much, but although I'm cancer free it still feels like a struggle everyday.
Had 6 weeks of radiotherapy after the surgery. My chewing and swallowing seems to be getting progressivly worse, and the area around the hip and tummy is still causing me pain and mobility issues i.e. sitting too long, cannot pick foot up as to put sock on, unable to bend down to my feet.


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