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PaulB #192715 07-12-2016 07:02 PM
Joined: Feb 2016
Posts: 6
Kokomo Offline OP
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Joined: Feb 2016
Posts: 6
Paul,
I can't thank you enough for sending me the article. It did take me a while to get through it. There were many words and phrases that I did not understand. I am used to that by now though. It was the same when my husband was diagnosed with kidney cancer. I had no idea what even 1 sentence meant. But I preservered and looked up every word until I had an understanding and could ask the Drs a meaningful question. Now with this cancer, I have a new language to learn and I will. The article gave me some piece of mind in that some of the contributing authors are actually the same Drs treating my husband now. It gives me a sense of confidence that we are in the right place. I know we have a rough road ahead of us but we have been fortunate to have great medical teams to work with us through these 3 cancers. We are fighters. My husband is the strong one. He is the one who fights through all the tests and treatments and side effects. I am the researcher. I am the one who asks all the questions, discusses possible treatments, has all treatment results memorized. I have learned that the Drs appreciate an informed caregiver and patient and we work well as a team. I am appreciative of any information anyone has in relation to small cell cancer in the head or neck area.
Brian mentioned Opdivo and the exciting new classes of drugs coming on the market to fight different types of cancer. The cancer world is changing and I am hopeful.
Kokomo

Kokomo #192716 07-12-2016 07:34 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Kokomo, what a coincidence having the same physicians who contributed to the article treating your husband. Small world!

Ive passed along the email address thru a PM.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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