| | Joined: Jun 2016 Posts: 1 Member | OP  Member
Joined: Jun 2016 Posts: 1 | I'm Rob, diagnosed in 2014. 5 different chemo regimens didn't work, and I wasn't considered a candidate for radiation or surgery.
I have a peg tube for food and I can still drink liquids, though the tumor will probably end that at some point.
Joined this forum to look for nutrition advice, as well as offering what support I can provide and hoping to cope with things as they are. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Rob! Welcome to our group! Im so very sorry your arent able to do any treatments. I have a couple questions for you. Did you go for a second opinion? Have you ever gone to a Comprehensive Cancer Center (CCC)? Here is a link to the main OCF site that has page after page of info. Read thru it and Im sure you will find some very good info about feeding tubes and nutrition. Main OCF site--- Nutrition/Feeding Systems Hope this helps!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Hello, Rob
I hope you can enjoy drinking liquids while you can. Did you receive any immunotherapy treatments?
I admire your philosophical attitude. We somehow have to learn to cope with what is thrown at us.
Thinking of you.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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