| | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) |  "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Ashley, what a beautiful tribute to Brandon. This made me smile and this made me cry. What a gorgeous young man. He has left a loving legacy with his Family.
He would be wanting you to smile and keep living, to be enjoying life.
Thinking of you all,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | A beautiful video and tribute. Wishing you and your family the best. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Oct 2008 Posts: 246 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 246 Likes: 1 | What a beautiful brother and family - the warmth comes through in the video. This disease is bad enough for those of us who have lived most of our lives cancer free, but in the young, it is truly heartbreaking.
Thinking of you,
Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Ashely,
Thank you for sharing that video with us. It made me cry and also made me smile seeing what a loving family you have.
I often think of you and Brandon. I know you and your family will never forget your little brother, but in time the painful memories will fade and will be replaced by all the happy and loving times you shared as a family.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Nov 2015 Posts: 18 Member | | Member
Joined: Nov 2015 Posts: 18 | Ak123-
My heart hurts so much for you. This horrible cancer has ruined so many lives and taken those we love. I'm so so saddened for you. The video you posted was amazing. I have to admit though, I couldn't watch the whole thing, it hurts too bad💔. I'm sure you feel so alone, but please know you're in my thoughts and prayers!!!! I feel so guilty- this year has been the worst of my life, but my husband is still fighting to be a survivor for a second time through this. Your brother is gone, and I thought my pain through all of this was bad... I'm so very sorry. I'm so sorry 😥. It's so not fair.
Wife of a stubborn survivor
Scared of the unknown
| | | | | Joined: Nov 2017 Posts: 3 Member | | Member
Joined: Nov 2017 Posts: 3 | ak123, I was so devastated to learn the story about your brother. Such a young beautiful man has gone. He had the whole life ahead of him but suddenly one day everything can change.  Great youtube video. Unfortunately, this type of cancer appears to attack more and more young people. Very sorry for your loss. Although some time has passed, I am sure you are missing him. HUGS | | |
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