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| | Joined: Apr 2016 Posts: 13 Member | OP  Member
Joined: Apr 2016 Posts: 13 | Thanks I'll keep looking. First appt. with the oncologist today at 3. Hopefully I will know more after that. Still in mega pain from the surgery. Maybe he can help with that too...
Suzanne B
Suzanne B 62 non-smoker
04/07/2015 Excision of left tonsil with surrounding tissue
04/11/2015 Biopsy results SCC of Tonsil HPV16
04/23/2016 New diagnosis oropharyngeal cancer
05/12/2016 Radiation begins each weekday X 7 weeks
05/17/2016 Chemotherapy start
07/01/2016 treatments complete
| | | | | Joined: Apr 2016 Posts: 13 Member | | OP Member
Joined: Apr 2016 Posts: 13 | Thank you so much for your message. I will continue to look each day for some partners to go through this with. I appreciate hearing from you survivors as it gives me hope that it can be arrested. I'm a fighter but I know it's gonna be
Tough. Thanks again
Suzanne B
Suzanne B 62 non-smoker
04/07/2015 Excision of left tonsil with surrounding tissue
04/11/2015 Biopsy results SCC of Tonsil HPV16
04/23/2016 New diagnosis oropharyngeal cancer
05/12/2016 Radiation begins each weekday X 7 weeks
05/17/2016 Chemotherapy start
07/01/2016 treatments complete
| | | | | Joined: Mar 2016 Posts: 8 Member | | Member
Joined: Mar 2016 Posts: 8 | Welcome! I too, am new to this journey. I have found this site to be very encouraging and truthful and helpful. You will find out lots of information here from people who have gone through and are going through what you are.
best wishes with your journey!
51 year old non smoker
Dec.2015 Diagnosed with squamous cell cancer of tongue
Jan 2016 Clear PET
Jan 2016 Partial glossectomy
April 21,2016- hemi glossectomy with RFFF and left neck resection.
-trach for 6 days
-feeding tube for 8 days
-home on day 9
Pathology May 2016
T2 N2B M0
2 positive lymph nodes
30 rads completed July 13/2016
| | | | | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 55 | Be sure to let us know how things went with your oncologist yesterday. The first couple of days after surgery can be tough, so I hope you're getting through it OK. I know from experience that keeping the pain meds flowing before it starts to feel awful is the way to go. Need to stay ahead and not chase the pain. I'm sure your docs and nurses have told you this. They're right!
Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear
| | | | | Joined: Apr 2016 Posts: 13 Member | | OP Member
Joined: Apr 2016 Posts: 13 | My pet scan came back without mets or lymph node involvement. I will be having a scope of the throat to rule out any possible problem. My mask was made for my radiation treatments and that was interesting. Made it through though. Thank you for all your kind words and advice. Tonsil area is still healing after 3 weeks which is concerning me. My surgery was a little more involved than the regular tonsillectomy as much tissue was removed surrounding the tonsil including part
Of the palate.
Suzanne B 62 non-smoker
04/07/2015 Excision of left tonsil with surrounding tissue
04/11/2015 Biopsy results SCC of Tonsil HPV16
04/23/2016 New diagnosis oropharyngeal cancer
05/12/2016 Radiation begins each weekday X 7 weeks
05/17/2016 Chemotherapy start
07/01/2016 treatments complete
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