| | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Yesterday was one year that I thought I was going for French food at lunch after my dentist appt and instead ending up spending the afternoon having a biopsy on my tongue which turned out to be cancer. Wasn't one of my finer moments. However, I made it to the year mark without chemo or radiation being deemed necessary. I am very grateful that it worked out this well for me and wish it could be so for everyone.
I do still go for monthly check ups at the cancer center. Today, I have a bit of a sore throat from allergies and post nasal drip I believe, but nonetheless have been looking down my throat with a big flashlight thinking I "might" see something suspicious. I guess that will never go away. I have had a good year overall and am hoping for many more. I have always been a bit paranoid, but I guess the worry is really nothing new for me! Hope everyone has a nice holiday tomorrow if you celebrate Easter.
Denise
Last edited by Neicy; 03-26-2016 02:51 PM.
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Congratulations and yes, I believe we all look over our shoulder for the beast most of the time. I don't let it consume me though. One day at a time, as positive as I can be, it may have taken some things away, but cancer will never define me! Never EVER give up! Good luck, Neicy!
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Mar 2015 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2015 Posts: 55 | Hi Neicy. Your diagnosis' timing and mine are about the same, and although our treatments took different paths we find ourselves in about the same place a year later. For me the worry doesn't go away either, in fact I've not read anyone here - talked to anyone in my treatment center - that said it wasn't a permanent worry. But it *is* something we learn to tolerate and adjust to. Life goes on, and there is so very much to be grateful for. Congrats on your 1-year status!
Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Thanks PJE. I am so lucky and I know it. Going to spend my year anniversary in the mountains in Colorado. I am gonna eat and sleep in a hotel. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Why was my above post edited? It's not funny now. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Hi Denise,
Congrats on the one year clear. Big milestone. Lots of recurrences are behind you but still not in the clear yet. Time goes by and life goes on. Enjoy each day and each breath. Live just gets better every day!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Thanks donfoo. I still have another year of monthly checks to go for. I am glad I am not obsessing and actually would like to just go for monthly check ups from now on! It keeps me from getting into checking myself too much. Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
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