Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
Joined: Dec 2014
Posts: 55
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Dec 2014
Posts: 55
If you are still going the route of Erbitux the side effects can vary. Most people including myself had a lot of skin issues. Really dry skin and some pretty bad rashes. The rash was all over the body and was very uncomfortable. I was prescribed some gels and stuff that helped some. Also I had issues with my fingertips and toes. They would get really sensitive and cut open easily. I ended up using the liquid bandage stuff so that I could still use my fingers to grab stuff. Other than that, I didn't really have any more side effects. I am sure that there are some other people with different effects than me.
I would look into Opdivo. I am hoping to start that soon. Still waiting on approval.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health
Joined: Mar 2016
Posts: 7
scg Offline OP
Member
OP Offline
Member

Joined: Mar 2016
Posts: 7
Dear Jeff,

Thank you for your reply. I will certainly keep your advice in mind. Yes, we are going ahead with Erbitux. I'm sorry that you had to go through a lot of skin related side effects.

Best wishes,
Ruchi



CG for my father,65, diabetic.
Primary: squamous carcinoma of right upper gingiva. Oct'15.
Surgery+RT, primary clear.
Secondary: both lungs. Mar'16.
About to start treatment for secondary.
Joined: Jan 2013
Posts: 1,291
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,291
Likes: 1
Hi Ruchi,

I wish your dad well on his treatment plan. I think in general if cancer has metastasized in a distant area, the general prognosis is not so good. In that the docs generally won't state there is a cure. So if not curable but treatable, it falls with the palliative label. I'm sure no doctor but that is the impression I get of the use of the terms curable and palliative.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Page 2 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,924
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5