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#191983 03-13-2016 08:45 AM
Joined: Feb 2016
Posts: 7
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Joined: Feb 2016
Posts: 7
I have a 3 month PET scan Tues and appointments all day Wed. Doing good up till now. Getting so scared, nervous. Psyching myself up for the possibility of a neck dissection but other than that I think its a little PTSD about going back to the hospital I had all my treatments at and remembering. I made it through ok. Chemo was OK. Rads was ok and I conquered the mask. Guess I have scananxiety and I do have leftover Ativan. Sigh. Trying to eat more too thank you ChristineB! I want to get this damn tube out.


Karen
Nurse/49 year old non-smoker/rare casual drinker
2008 Papillary Thyroid Ca with RAI and Thyroidectomy
9/2015 L Pyriform Sinus SCC HPV+ mets to two lymph nodes
T3, N2b, M0 = Stage IVa
10/14/15 Tonsillectomy and Panendoscopy
10/27/15 RADS 37 tx and weekly Cisplatin Chemo
03/15/16 3 month PET scan scheduled
kdot2003 #192040 03-19-2016 05:52 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Boy time flies! Seems like it was only a week or so ago that you first posted.

Yes, I am a nag about eating. I hate seeing anyone struggle when its something they have control over. Not eating enough landed me in the hospital a few times. Im so glad you are focusing on your intake!

You arent alone with the scanxiety. Most of us have it when check time draws near. After going thru so much, its normal to be more than a little nervous about appointments. Going back to the place that caused you so many traumatic experiences is difficult. For me, Im almost 7 years past the major life-changing mandibulectomies. Thats where my son sat and talked to me every day for 2 months even while I slept in a medically induced coma for 3 weeks. It still bothers him when he goes back to that hospital. If taking Ativan works for you to get past the scanxiety, then use it. Would talking with a therapist help too?

Easy to Eat Food List

(All measurements are estimates)

Giant High Calorie Choc-Peanut Butter Milkshake (1200++ calories per shake)

3 or 4 cups chocolate ice cream (regular/full fat type)
2 tablespoons peanut butter (smooth type)
2 tablespoons chocolate syrup
1 or 2 cups whole milk (can substitute half and half to add even more calories)
1 scoop carnation instant breakfast
1 scoop high protein whey powder
(check with doc if this is ok)

Blend this extra long to make it very smooth and creamy so it goes down easier. If the shake is too thick, add more milk to thin it down to what works best for you.


Maybe the above list of easy to eat foods and the calorie loaded chocolate milkshake will help. Best wishes with continued improvements with your eating!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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