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Mandy #191674 01-31-2016 11:39 AM
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Stay positive - keep a good attitude. My husband is 8 weeks out now - we are at MD Anderson for our results if cancer - base of tongue Stage IV. It has been a nightmare but we made it send you can too. The healing past is 10 times worse than the treatment sorry to say. Do day by day even hour by hour if you have to. My husband still struggles - no surgery - has his tongue but only half of it works same in throat area. Very hard for him to swallow - has a feeding tube.
He will make it through his faith and will to live and so can you.



Mandy #191745 02-10-2016 01:50 AM
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all finished with treatment,now to wait for more side affects to kick in before it starts to get better,feel glad its over but nervous about the future,i handled the certuxamab quite well,a moderate crusty rash but no nausea or tingling or anything,radiation was worse,have a ct scan in 2 weeks and then i dont know


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #191746 02-10-2016 07:34 PM
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Congrats on finishing your treatments, Mandy!

If you continue to focus on your intake it will help your body to heal. If you struggle with swallowing, push yourself to take small sips of water at a time. Every day get the minimums of 2500 calories and 48-64 oz of water. Im sure this will not be easy for you right now. Most patients feel their worst when just finishing rads and about the first 2 weeks afterwards. For many their swallowing reflexes are compromised right about the end of rads. The swallowing muscles can quickly forget how to function properly which is why I mentioned it so you can avoid these issues. Check with your doc if its ok to add high protein whey powder to your diet. This helps promote faster healing.

Hang in there and check in from time to time to keep us posted on your progress.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Mandy #191847 02-23-2016 09:23 PM
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2 weeks since finishing certuxamab and rads,dont feel to bad,very,very, itchy and burn taking longer than normal to heal,getting very nervous about my 10th of march scan and appointment


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #191849 02-24-2016 12:43 AM
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Wishing you well, Mandy. It seems like a good sign that you aren't feeling too bad after all you have been through. What can you do to take your mind off the 10 March scan? I know how hard it can be. Keep us informed about how you are recovering from treatment:)


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
Mandy #192167 04-02-2016 10:01 PM
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7 weeks out from treatment,1 clear ct scan,back to the dr on the 18t April,every 6 weeks for the first year,im hoping i can acctually go a full year without a recurrence,taste starting to come back,still having issues with pimply rash from certuxamab,goes away then comes back


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
Mandy #192169 04-03-2016 12:23 PM
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All sounding very positive Mandy. Yay for clear CT scans. I will keep everything crossed for continued NED.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Mandy #192219 04-12-2016 04:11 AM
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time for another check up,comes around to quick,getting alot of pain and tingling and nerves doing funny things in my face,im hoping its just things rejuvenating after my major surgery nearly 12 months ago,any one have a really dry nose after surgery,it doesnt run anymore,when i sneeze it comes out my mouth not my nose,because its always so dry it cracks and gets sores in it


nov 2013 ssc of buccal mucosa stage 2
jan 2014 neck dissection because of cancer in lymphnodes
feb 2014 6 weeks of radiation
march 2015 tumour buccal mucossa stage 4
june 2015 lower jaw removed
nov 2015tumour in left node on neck
jan 2016 radiation and chemo to commence
Nov 2015 left deck dissesction,1 posative node
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