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| | Joined: Jan 2016 Posts: 4 Member | OP  Member
Joined: Jan 2016 Posts: 4 | Hello. I'm from NC. Two time survivor. Stage IV nasopharyngeal 2009/tonsil 2014. 44 years old. Looking to connect, help and seek answers too. I am very interested in helping locally. There have to be people looking for answers or even help that my experience can be of service. Im a patient at Duke currently and in good health as far as I know. I've just reached this point where i want to help people if I can even if it means reaching out or sharing my experience. I'm not sure how to use the forum layout yet so bear with me. Peace...
Matthew 44 years old
Former smoker
12/09 diag Stage IV SCC Nasopharyngeal
1/10 6 rnds cisspl/35 rad
PEG tube 6 mo
Xerostmia (permanent)/Loss of taste/smell 6 mos+
Clear PETs 2 years
Clear MRI 2 more years
12/14 HPV pos SCC left tonsil
1/14 Tonsillectomy on left + one for clr mrgns
3/14 Removal left lymph nodes
Ongoing-check ups and screening at ENT
QOL overall good. New normals, but happy to be alive and learning more everyday to overcome fear and enjoy my life and my family.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to our OCF family! OCF is made up of patients/survivors and caregivers who support each other. You are in the right place to help others with your experiences.
Im sending you a private message (PM) that I send all new members. There is a link included to help you quickly learn the ropes and make using the forum easier. Look next to the My Stuff tab towards the top, center of the menu bar. Click on tiny flashing envelope and get your message. Please follow the instructions in the link to add your signature.
Thank you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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