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ahubbell #191637 01-28-2016 02:09 PM
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We are just doing a consult but our fingers are crossed that insurance will cover the procedure. Thank you so much, again..


ashley
ahubbell #191643 01-28-2016 08:21 PM
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
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Ashley, Ive done a quick search on the US News Best hospitals. When finding a treatment center I would advise to go with the very best medical care you can get. Unfortunately, on my search the Provisions Proton Therapy Center was not listed at all on the list. Moffitt came up as #18 on the list of top US hospitals. In my opinion, when given a choice of treatment centers, it would be a good plan to take this into consideration. Ive added the link to my post in case you would like to check out any other facilities on that site.

US News Top Hospitals

A feeding tube is a tool to help the patient get thru a period of time where they may not be physically able to eat or drink enough to maintain their health. This happens to some patients when being treated with radiation or complex surgeries. I know its a horrible thought thinking of eating thru a tube in the stomach. Ive had my share of phobias and apprehensions about using one. Often patients feel like everything is out of their control and they have no say in what they want and need. Thats why when given a choice, often the patient will say "NO WAY!" as a chance to finally be able to get heard by their medical team. Having a tube for most is a temporary situation and can greatly aid the patient in keeping up with their daily minimums of taking in at least 2500 calories and 48-64 oz of water. Please pass this along so a decision is carefully weighed. Ive seen far too many patients refuse to get a feeding tube only to end up needing emergency surgery to get one as they cant maintain themselves for one reason or other in the middle of their treatments. Remember, its easier to have it and rarely use it than to desperately need one due to malnutrition and dehydration and have to wait over a week to get it placed. Plus on top of waiting when the patient needs it right away, they usually are feeling pretty bad due to going for so long on too few calories and hydration intake. No matter what the choice that is made, we will be here to help support you both.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ahubbell #191714 02-02-2016 01:56 PM
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I had SSC on the base of my tongue and it only went to one node. I did 42 sessions of Tomotherapy with no surgery or radiation. The doctor used an "MC Anderson protocol" which was 18 days of 1xday and then 14 days of 2x day. I am 5 months post-treatment and according to my PET scan, cancer-free. I'm doing well.

You have some good information about the different options from people listed above. Check out my other post about my recommendation regarding a PEG tube. Short version...I STRONGLY recommend one for your dad. Good luck!!

___________

Last edited by ChristineB; 02-02-2016 03:39 PM. Reason: removed duplicate info

Thomas
50/married/2 children
SCC - Base of tongue + 1 node - P16 pos
Diagnosed 5/2015
Positive PET scan - 6/2015
Tomotherapy (42 treatments) through 8/2015
PEG tube - 9/15 - 1/16
NEGATIVE(!) PET - 11/2015
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