| | Joined: Jan 2016 Posts: 2 "OCF Canuck" Member | OP  "OCF Canuck" Member
Joined: Jan 2016 Posts: 2 | Happy New Year, and thanks for being here.
After having symptoms for only a short time, and no risk factors, I have just been diagnosed with locally advanced SCC of the tongue base. Currently going through meeting the CCC care team, doing all the staging/planning etc and emotionally all over the place.
I have tremendous family/friend/neighbour/workplace support, and realize how fortunate I am in that. Treatment will begin within a couple of weeks, and I am apprehensive about it but everybody has been very honest with me and I am sure that I'll get through, but already have a lot of "detail" questions for that forum.
Will be back often.....
StanV
locally advanced oropharyngeal SCC
new Dx December 2015
Finished chemo/radiation March 2016
Osteonecrosis May 2016, resolved with debridement
Clear PET scans July 2016 and January 2017
Ongoing issues with dry mouth, swallowing, etc but so grateful to be here
| | | | | Joined: Feb 2015 Posts: 17 Member | | Member
Joined: Feb 2015 Posts: 17 | Stan I had a similar diagnosis. Surgery on 2/3/15. 10 months later and all is still well and I am living my regular life. Residual tongue irritation and some numbness, a bit of a lopsided smile..but hey I have a lot to smile about! May the New Year bring you health and happiness.
I am a 65 year old reitired woman. I have been married to a great man for 42 years. I had a right breast masectomy 15 years ago.
squamous cell carcinoma under my tongue was diagnosed earlier this month. I had surgery 2/3/15. 22 lymph nodes out of my neck came back negative for metasis. The Drs. say I do not need chemo or radiation. I'm off the feeding tube and now on a liquid/soft food diet. I see the surgeon again next week. I am grateful and optimistic.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Stan! Glad you are here to get info and support to help you with everything thats coming up. We have been thru this so know the ins and outs of treatment. Stick with us, we got your back 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Stan, welcome to our family. Sorry you need to be here, but you'll get amazing support from a very helpful and knowledgeable crowd. We're with you every step of the way. Please don't hesitate to ask any and all questions or just open up and rant. I know you're scared, but you'll get through it and we're here to help.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Stan, I too want to say Hello. You will get much advice and support from others who have been through this , on this site. Anything you want to ask or need more information on, come here and ask.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Apr 2015 Posts: 91 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2015 Posts: 91 | Hi Stan. I want to chime in with my support and encouragement with the others! I am sorry you are having to deal with all this. Cancer sucks. No way around that one but I will tell you that the surgery I had was not nearly as bad as I anticipated. It is different than yours but nonetheless I think many times what we imagine is harder than it turns out. I am glad you have a good support system. That will make it smoother for sure!! Good luck and keep us posted!! Denise
Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
| | | | | Joined: Jan 2016 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2016 Posts: 55 | Wow Thank you Stan. I will begin my own thread now and follow yours closely. Looks like we are beginning a similar journey.
Leonard
Leonard
BOT T2N0 Diagnose Confirmed December 7th
Treatment Start Radiation January 11th Last treatment applied February 19th 2016
| | | | | Joined: Sep 2014 Posts: 87 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2014 Posts: 87 Likes: 2 | Happy New Year. Glad to hear that you have a good support system already lined up.
Sounds like you've done your part by getting in to see the doctors, and now they have a plan of action already set up. All you can do now is wait for the professionals to fix you all up, so about the only bit of advice I can offer at this stage is to try not to spend too much time worrying. Tough to do, but excess worry does nothing to benefit you.
Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome to OCF. Come back often as there is a ton of experience to help you get through the practical day to day stuff.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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