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#191354 12-09-2015 06:55 PM
Joined: Dec 2012
Posts: 17
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Joined: Dec 2012
Posts: 17
Has anyone heard from him lately? I'm concerned he crossed the Rainbow Bridge.


"I have always depended on the kindness of strangers."

Blanche, Tennessee Williams' "A Streetcar Named Desire"
Virgo #191358 12-10-2015 09:18 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
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He was last on OCF on 12/1/15, according to the User List.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Virgo #191359 12-10-2015 02:39 PM
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Patient Advocate (1000+ posts)
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Joined: Oct 2012
Posts: 1,275
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hEllion and I pm'ed each other a few times when he was diagnosed with the recurrence. I lastt heard from him in early September this year. I don't have further news from him.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Virgo #191911 03-02-2016 08:51 PM
Joined: Nov 2015
Posts: 18
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Joined: Nov 2015
Posts: 18
Hi guys. I pm'd with the hellion on January 29th. If it's the same person, they are still figuring the fight. 😊


Wife of a stubborn survivor
Scared of the unknown
Virgo #191917 03-03-2016 09:05 AM
Joined: May 2006
Posts: 720
Likes: 1
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2006
Posts: 720
Likes: 1
He's been posting every so often to his thread "The Watchful Peace" -- most recently on Feb. 15.


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
Virgo #191956 03-08-2016 05:14 AM
Joined: Mar 2014
Posts: 286
"OCF Down Under"
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"OCF Down Under"
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Joined: Mar 2014
Posts: 286
I'm talking to him and his wife, I'll give him a prod to provide an update.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Virgo #191964 03-09-2016 09:04 PM
Joined: Dec 2014
Posts: 55
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Dec 2014
Posts: 55
I would love to hear from him. I pray he is doing well. I am close behind him in both diagnoses and treatments. Would love the advice and help.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health

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