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#191286 11-30-2015 12:46 PM
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Have you had cancer come back on the lungs? I had a chest xray today and it showed a white spot on the right lung. PCP is treating it as pneumonia, but also ordering a chest CT and swallow study. Just curious.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #191288 11-30-2015 01:04 PM
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The swallow test is for determining if you suffer from aspiration pneumonia, which is quite different from viral pneumonia. My husband has lung metastases, it is not considered a recurrence.

Hopefully the CT scan will give your doctor a better idea of what it is. In the meantime, focus on something else, like your little girl or a hobby. It will help to take your mind off the fearful thoughts.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
walknlite #191289 11-30-2015 03:58 PM
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I have been clear for 6 years. Would it be considered second primary?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #191290 11-30-2015 04:54 PM
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Sorry, Angelia, I didn't make it clear. My husband has lung metastases because it was diagnosed six months after his initial treatment ended. It was therefore not a recurrence. Please don't worry about all the possibilities for now, wait till you get the results of the scan.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
walknlite #191291 11-30-2015 05:51 PM
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Just remember... sometimes a spot is just a spot. Ive had a "spot" on one of my lungs for years. It hasnt changed at all over several years, so in my situation its nothing to worry about. Try not to get ahead of yourself until everything comes back and the doctor reviews it with you.

Hoping its nothing serious!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
walknlite #191292 12-01-2015 08:59 AM
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I have had a spot growing larger since around 2007. I also have spots all over from aspiration pneumonia and damage to my lungs from significant breathing problems and all of that has created COPD. The bigger issue is fibrosis in the hylar region that appeared shortly after treatment that is considered radiation damage that never healed.

When you worry or are subjected to stress, cortisol gets dispatched and fibrosis grows. Periodic early A.M. cortisol tests will give an indication stress is too high and potentially advancing fibrosis.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
walknlite #191293 12-01-2015 09:40 AM
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Hey guys thank you all. I will be having a Swallow study and CT scan on Friday. I am just ready for answers. I have been sick for over a month and no one can tell me why. Blood work has all come back normal.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #191319 12-05-2015 06:07 AM
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Posts: 2,671
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My son also had a spot on his lung and it took a long time (from our perspective) for the results to come back so we imagined all the worst. We found out later that they were waiting from results from two different hospitals. And the spot really was "just a spot". It was scar tissue from pneumonia. The waiting is SO hard, but try not to dwell too long (like maybe 1 or 2 minutes) and then switch to all the Good outcomes that it could very well be. About the blood work, did it include checking your Vitamin D level? If that is on the low side, it could make you feel really tired. Sending positive vibes your way for some good news.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



walknlite #191529 01-10-2016 06:41 PM
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Brief update: After my ct scan I was referred to pulminologist. He took a look at the scan and said we couldn't afford to wait and watch. He said he counted more than 23 nodules. I had biopsy last Monday. Now we are waiting on those results.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #191533 01-11-2016 10:05 PM
Joined: Mar 2011
Posts: 1,024
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Keeping you in my thoughts and prayers.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!

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