| | Joined: Jun 2015 Posts: 29 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Jun 2015 Posts: 29 |
Mom (beautiful soul) 12/4/14 SCC L tongue (neg. biopsy 10/14);
1/8/15 hemiglossectomy/neck dissection: T3N1, extracapsular extnsn, PNI, pseudoglandular/spindle cell, margins not clr;
2/2/15 RT/carbo/taxol;
4/15/15 CT clr;
5/15 neuropathic/trigeminal pain/headaches;
6/15 recurrence flap margins/BOT; cancer encroaching skin
7/23/15 hemiglossectomy; clr margins & nodes
10/22/15 CT: nasopharyngeal tumor, jaw, and necrotic nodes; tumor under chin/corner of mouth
11/5/15 left cancer behind
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | My son used a Neti-Pot and it did help him.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2015 Posts: 6 Member | | OP Member
Joined: Nov 2015 Posts: 6 | THANKS I tried the neti pot today felt clean for the first time in a long time Got a new book a guide to cooking and eating soft-pureed food.. I don't want to eat, but these two avenues will make it easier.
Thanks everyone. I love you
miss pam
RN psychiatric hospital
67 years old
1st diagnosis 7/22/15
1st surgery 8/15/15
radical excision of hard palate
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Welcome, Miss Pam! You are never alone in OCF and in these forums. We are an elite club that no one ever wanted to join, but here we are...strangers who have become great friends and the family we always wanted! There are certainly some people on this forum that have done lots of experimenting with different food textures. ChristineB has a list of "easy to eat foods". I would suggest a crock pot and perhaps the Vitamix blender (OCF has a partnership with them). Here is the link http://oralcancerfoundation.org/vitamix/...or just go to the main page and you'll see the link. I hope this helps! Love in OCF, Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Nov 2015 Posts: 6 Member | | OP Member
Joined: Nov 2015 Posts: 6 | Hi, the neti pot was a success !!!!! I am making new recipes for soft-pureed foods. Still hard to accept the textures, but Its getting better
miss pam
RN psychiatric hospital
67 years old
1st diagnosis 7/22/15
1st surgery 8/15/15
radical excision of hard palate
| | | | | Joined: Nov 2015 Posts: 6 Member | | OP Member
Joined: Nov 2015 Posts: 6 | I have finally made my follow up appointment with my surgeon. Just don't want to know what he has to say.
miss pam
RN psychiatric hospital
67 years old
1st diagnosis 7/22/15
1st surgery 8/15/15
radical excision of hard palate
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Make sure and think of any questions you might have for him and it does help if you can have someone go with you to help you remember what he/she said. If someone goes with you they can help remind you of stuff. When my son was in cancer Tx, my daughter, my nurse friend and I all went with my son and later it helped when we checked with each other to "interpret" or remember something positive the doctor had said. Is your appointment coming up soon? If it's a long way off, sometimes they can move it up so that you have less time to worry about it.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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