| | Joined: Oct 2015 Posts: 1 Member | OP  Member
Joined: Oct 2015 Posts: 1 | Hello All,
After having a few rough years that included stage 4 tonsil cancer & a reoccurrence. (Chemo, radiation, surgery, interopertive radiation, & more radiation) I decided that since I've always wanted to live on a tropical island that now was the time to do it. So I recently moved to St. Thomas, in the US Virgin Islands. And yes, the weather and the beaches are great.
I'm lucky to be cancer free since 2011, but I'm living with a g tube and managing some treatment related disabilities. So I'm hoping to find a doctor here to help me with my g tube, medications and enteral supplies.
I'm also interested in meeting other tubies who live here or might be visiting here.
Does any one here have any suggestions?
Thank you so much.
Last edited by BBill; 10-14-2015 05:20 PM.
SCC Right Tonsil 8/2009
Radiation
Chemo
G Tube
SCC Right Tonsil the second time 12/2010
Surgery with inter-operative radiation 1/2011
More radiation until 5/2011
Now retired and trying to live the good life as a beach bum while being a tubie. So far so good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF, Bill. We have members from all over the world. Unfortunately, off the top of my head I cant remember anyone from St Thomas. With over 13,000 members we must have at least one from your area in paradise. When looking for a Gastro doc, I would suggest calling your insurance company to see who is available. They should also help you find a family doc and an ENT to oversee your post cancer care. Best wishes with your big move 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Bill,I can't help with any of your queries but I love that you are living your dream.
Do you have a Mickey button in situ? Are you able to change this yourself? It is a very simple procedures hat I have done myself many, many times.
Hope all goes well for you with your new home and lifestyle.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | HI there welcome. I don't live in St. Thomas either... however there is a place on the web founded by someone from here that is for tube feeders and talks about diet etc... there may be someone else their from St. Thomas. I would enquire.
I think it's called drink your nutrition or something. search it to see what you come up with. It has recipes for people who prefer to "eat" more healthfully - rather than just ingesting formula type food. Anyway best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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