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JPT68 #190813 09-26-2015 10:16 PM
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"OCF Canuck"
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
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So glad to hear the chest is clear... Hugs and blessings that all goes well on Monday!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
JPT68 #190885 10-07-2015 01:15 PM
Joined: Aug 2015
Posts: 23
JPT68 Offline OP
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Thanks everybody for your posts.
I had the surgery at MD Anderson 9/28/2015-they did a neck dissection on the left side with a chest flap. I didn't think I had that much chest muscle but the surgeon said I did. The surgery was about 5 and 1/2 hours. The surgeon wanted to do a mandibulectomy on the right side because of ORN in the right posterior mandible. However, I expressed some questions about the surgery and he did not want to do the mandibulectomy because of my ambivalence. I am not sure about the mandibulectomy. The plastic surgeon did not want to do a reconstruction of the fibula to the right side of the jaw because it would be "too heroic". I guess that is because of the surgery and radiation I had prior-70 gray, hemiglossectomy with a right wrist flap, right neck dissection. In the left neck dissection, 27 nodes were taken out. One of the nodes was cancerous with slight extracapsular spread. They are ready to do 23 radiation treatments. They did 12 gray of intraoperative radiation. The total will be 46 Gray of radiation. I am not looking forward to having more radiation, but I guess this "cleans out" the region where there might be some "worrisome" nodes.

Last edited by JPT68; 10-07-2015 02:10 PM.

4-2014 SCC BOT rt. 2 nodes
6-2014-8-2014 Baylor Sammons Dallas,
70 gy. Carboplatin Taxol
Peg tube 5/2014-present
biopsy(10/2014) mucoepidermoid carcinoma-not SCC.
11/10/2014 M.D. Anderson radical neck dissection hemiglossectomy flap rt. lower arm
1/2015 3xs-CDDP DOCATAXEL
2/2015 CT clear- ORN right jaw.
8/2015 CT. Lt. neck two nodes,right jaw ORN worsening. Biopsy- MEC.
Surgery 9/28/2015 lt. neck dissection-remove nodes and chest flap resection. Rt. jaw dead bone removal.
JPT68 #190886 10-07-2015 01:42 PM
Joined: Aug 2015
Posts: 23
JPT68 Offline OP
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Joined: Aug 2015
Posts: 23
I hit submit before I proofread the above post, so I hope it didn't get too confusing. My questions are the following:
I am experiencing a little bit more difficulty speaking-it is weaker and more "gravelly". I am hoping this is just temporary due to the surgery and radiation. Anyone experienced this and does it come back?
Has anyone else had the radiation and chemo 70 gray before the hemiglossectomy, flap reconstruction and neck dissection? This may be called a salvage surgery.
I have ORN of the right jaw and fracture and they want to just take the dead bone out but no reconstruction right now. Anybody experienced with this?
I was initially diagnosed with SCC and, after all the radiation and chemo and the tumor was not gone, they realized they misdiagnosed the tumor. It was mucoepidermoid carcinoma. Any one else had this?


4-2014 SCC BOT rt. 2 nodes
6-2014-8-2014 Baylor Sammons Dallas,
70 gy. Carboplatin Taxol
Peg tube 5/2014-present
biopsy(10/2014) mucoepidermoid carcinoma-not SCC.
11/10/2014 M.D. Anderson radical neck dissection hemiglossectomy flap rt. lower arm
1/2015 3xs-CDDP DOCATAXEL
2/2015 CT clear- ORN right jaw.
8/2015 CT. Lt. neck two nodes,right jaw ORN worsening. Biopsy- MEC.
Surgery 9/28/2015 lt. neck dissection-remove nodes and chest flap resection. Rt. jaw dead bone removal.
JPT68 #190951 10-14-2015 12:31 PM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
HI there - there are a few people here who've had salvage surgery. And others who've had issues with ORN. and yes... I've heard of that cancer here as well...

Someone... hopefully will be along soon to answer you. If not look up some of the key words...

ORN,
salvage surgery
and Mucoepodermoid cancer

and see who and what pops up. Maybe contact them directly?

hugs and best of luck.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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