| | Joined: Feb 2015 Posts: 17 Member | OP  Member
Joined: Feb 2015 Posts: 17 | I had pain for 6 days on my left side of my mouth. I was unable to hardly eat at all and really scared. I called my cancer Dr. and even though he was on leave for having his 3rd child he told me to come on in. I thought it was a reoccurence, I hoped it was just a rotten tooth. Turns out it was a minor mouth infection that he gave me a prescription for. Trying so hard for my head not to rule my body..but sometimes it does. Thankful today.
I am a 65 year old reitired woman. I have been married to a great man for 42 years. I had a right breast masectomy 15 years ago.
squamous cell carcinoma under my tongue was diagnosed earlier this month. I had surgery 2/3/15. 22 lymph nodes out of my neck came back negative for metasis. The Drs. say I do not need chemo or radiation. I'm off the feeding tube and now on a liquid/soft food diet. I see the surgeon again next week. I am grateful and optimistic.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Its very difficult for any of us to not panic whenever we have a "symptom" pop up. I guess thats part of the transition from being a cancer patient with the patient mindset to becoming a survivor. We have all been there at some point. Myself, Ive had more false alarms than I would like to count. Who would have imagined the day would come where we would hope for a rotten tooth? One positive thing about all this is that you are now acutely aware of your body and pay attention to anything that is out of the ordinary. You now will take action where before cancer you probably would have waited it out, not worrying and hoping it was no big deal. Congrats on your false alarm 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2015 Posts: 17 Member | | OP Member
Joined: Feb 2015 Posts: 17 | Christine..you are so thoughtful. I would like to meet you one day...
I am a 65 year old reitired woman. I have been married to a great man for 42 years. I had a right breast masectomy 15 years ago.
squamous cell carcinoma under my tongue was diagnosed earlier this month. I had surgery 2/3/15. 22 lymph nodes out of my neck came back negative for metasis. The Drs. say I do not need chemo or radiation. I'm off the feeding tube and now on a liquid/soft food diet. I see the surgeon again next week. I am grateful and optimistic.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes soo happy it was just an infection. It's hard for our mind not to go there... Its been a long time for me - almost 4.5 years since I finished rads, and I still have THOSE moments... Hugs and take care of yourself.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | If I ever get to Oregon I will let you know
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | All I have to say is YAY! so glad it was easily treatable.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2013 Posts: 67 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 67 Likes: 1 | Glad to hear it was nothing serious! I get the fear of various pains and swelling occasionally. One of the side effects of treatment for me is hypochondria.
Oropharyngeal Cancer, SCC, HPV 16+, stage IV T1N2b age 45
Started in my tonsils and spread to my lymph nodes
Cisplatin x3 with concurrent daily radiation treatments started 10/22/13 finished 12/6/2013
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