| | Joined: Aug 2015 Posts: 22 Member |  Member
Joined: Aug 2015 Posts: 22 | I pray all is well and you'll be talking clearly iN no time at all. We are all so fortunate to have found this support group.
6/23/15 DX SCC left lateral tongue and dysplasia floor of mouth
Surgery in October procedure: partial glossectomy, dissection L floor of mouth and neck
No RT or Chemo
Radial flap reconstruction
| | | | | Joined: Jul 2015 Posts: 15 Member | | OP Member
Joined: Jul 2015 Posts: 15 | Cheryld-
Thanks for sharing. I'm very confident in my surgeons. How long before you were able to talk comfortably and started trying to eat?
Tongue Cancer 2004- biopsy irritated skin, 2014 biopsy precancerous, February,2014 partial glossectomy- diagnosed with microscopic cancer- April 2014- partial glossectomy- microscopic cancer /cancer in nerve, June 2014- external radiation July, 2014, brachytherapy, July 2015 biopsy- cancer (about 2 cm)/also in nerve moved more toward front of tongue, August 2015 Hemiglossectomy reconstructed with arm flap 2/3 tongue removed
| | | | | Joined: Jul 2015 Posts: 15 Member | | OP Member
Joined: Jul 2015 Posts: 15 | Corlis-
I agree, we are very fortunate to have each other. Unfortunate to meet in such a way. Thank you for your prayers. I wish you all the best.
Tongue Cancer 2004- biopsy irritated skin, 2014 biopsy precancerous, February,2014 partial glossectomy- diagnosed with microscopic cancer- April 2014- partial glossectomy- microscopic cancer /cancer in nerve, June 2014- external radiation July, 2014, brachytherapy, July 2015 biopsy- cancer (about 2 cm)/also in nerve moved more toward front of tongue, August 2015 Hemiglossectomy reconstructed with arm flap 2/3 tongue removed
| | | | | Joined: Jul 2015 Posts: 15 Member | | OP Member
Joined: Jul 2015 Posts: 15 | Cheryl- That helps me stay optimistic. How long before you started feeling comfortable with your speech again? My tongue is very bulky right now and needs to settle. My reconstructive surgeon seems to really like his work and thinks it looks great. That makes me feel better. I can talk and have conversations but it sounds very distorted to me. I guess I have to be more patient.
Tongue Cancer 2004- biopsy irritated skin, 2014 biopsy precancerous, February,2014 partial glossectomy- diagnosed with microscopic cancer- April 2014- partial glossectomy- microscopic cancer /cancer in nerve, June 2014- external radiation July, 2014, brachytherapy, July 2015 biopsy- cancer (about 2 cm)/also in nerve moved more toward front of tongue, August 2015 Hemiglossectomy reconstructed with arm flap 2/3 tongue removed
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi sorry - geez it's been a busy summer sorry i didn't get back to you before now
After surgery I was eating at day 8 - omelette- mashed potatoes soft veggies.
I went away on day 17 and was able to survive in mexico at the buffet of a resort. Pastas, soft pancakes, eggs - I did fine. I would place the food on my good side and wash it down with a drink of water.
during radiation
I couldn't use my tube, so I drank my nutrition all the way through my treatment - NOT fun but doable.
Two weeks after treatment I had my tube removed. I was still taking in boost and protein shakes for the most part. Probably another week or two after that I started being able to swallow without if feeling like acid. Then I upped what I was eating to soft stuff and soups but nothing acidic or spice. From that point on it was a long haul just trying to regain taste and swallow (dry bulky things still bother me - everything else went down with a gulp of water or almond milk!)
hugs and hope you're doing well.
Last edited by Cheryld; 09-23-2015 08:48 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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