#19050 11-22-2005 03:42 PM | Joined: Nov 2005 Posts: 7 Member | OP  Member
Joined: Nov 2005 Posts: 7 | I have had so many questions. My wife was diagnosed with SCC of the right lateral tongue on October 13, 2004. We have been through hell since but getting stronger every day. She has had all of her teeth extracted, a partial glossectomy and neck dissection in 10/04 and radiation from 11/04 to 1/05. Then our worst fears - it came back in April, 2005. She started chemotherapy treatments in May and ended on August 26. She received 6 different chemo drugs that have just beat her up badly. As of last month it looks like the tumor is shrinking and in remission, however the side effects have been horrendous. I will navigate my way around to find answers to my many questions and hopefully I will have answers for other survivors also. Thank you for being here! Ken
My wife has SCC - Right Lateral Tongue. Diagnosed 10/13/04. Reoccurance 4/25/05. Teeth Extraction, Partial Glossectomy, Neck Dissection, Rad & Chemo.
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#19051 11-23-2005 12:19 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Ken, I am so sorry to hear of your wife's course through this disease and treatment. I am glad, however you found the OCF website. The information and the people here will help you SO much.
Welcome to the Forum, keep us posted on the progress you and your wife make.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#19052 11-23-2005 12:41 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Ken, Welcome to the forum. We well help as
much as we can.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#19053 11-23-2005 12:57 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Nice to meet you Ken, we are happy you found us and sorry you had to.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#19054 11-24-2005 04:39 PM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 | What specifically is going on with her? I am so sorry to hear about your battle! Warm thoughts your way-it is so amazing to see how AWFUL things can get and see the human body bounce back-I saw my father in the worse condition you could imagine and I was sitting eating T.Giving feast with him today. Just keep hope alive, stay strong.
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#19055 11-26-2005 04:21 AM | Joined: Nov 2005 Posts: 7 Member | | OP Member
Joined: Nov 2005 Posts: 7 | Shawna,
That is great to hear about your father! Specifically....well - the good new is that it looks like she has responded well to the chemo and no further surgery is needed at this time. The tumor has shrunk and looks like it is remission. However it has been all the side effects of the chemo treaments - numbness in hands & feet, loss of balance, mucositis, tongue pain, fatigue, loss of weight, diarreha, rashes etc. Now she is starting hyperbaric oxygen treatments on Monday for 6-8 weeks in order to do oral surgery (bone is coming through her gum). Hopefully we can get back to work on the permanent dentures after all this is completed. It has almost been 14 months and we are ready for some healing time and get back to some resemblance of our previous lives.
Thanks for your kind words - I will pass them on to Gail.
My wife has SCC - Right Lateral Tongue. Diagnosed 10/13/04. Reoccurance 4/25/05. Teeth Extraction, Partial Glossectomy, Neck Dissection, Rad & Chemo.
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