| | Joined: Aug 2015 Posts: 22 Member | OP  Member
Joined: Aug 2015 Posts: 22 | Thanks Bob I will continue to contact them about an earlier date. I appreciate all the help I have been given.
6/23/15 DX SCC left lateral tongue and dysplasia floor of mouth
Surgery in October procedure: partial glossectomy, dissection L floor of mouth and neck
No RT or Chemo
Radial flap reconstruction
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Call see if you can move up the ct and Preop - a family dr. Can do a Preop. I was pushing when I found out. I had my ct scan done in 24 hours of getting my dx, I had my results within the hour I had my referral within 5 minutes after getting the results. I had my acceptance but the specialist within 2 days, he wanted an MRI which they scheduled a month later - I had a friend who got it moved up for me - a week later I met with the specialist. Two weeks later I had surgery (this was during the Christmas slow down - 5-6 weeks from dx - surgery. It should NOT BE LONGER - this is a cancer that can be highly aggressive. This is your life... Make noise. Hugs. PS CT, MRI, and CT results are usually available within 24 hours. Preop takes - max a day.
Last edited by Cheryld; 08-20-2015 09:29 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2015 Posts: 22 Member | | OP Member
Joined: Aug 2015 Posts: 22 | Thanks Cheryl, I will call again tomorrow and I will push harder. I signed up for a clinical trial for a new drug. Maybe I should back out of it just in case it's why my surgery is delayed. Okay to help others but not at my own risk.
6/23/15 DX SCC left lateral tongue and dysplasia floor of mouth
Surgery in October procedure: partial glossectomy, dissection L floor of mouth and neck
No RT or Chemo
Radial flap reconstruction
| | | | | Joined: Jul 2015 Posts: 15 Member | | Member
Joined: Jul 2015 Posts: 15 | Corlis- I feel your frustrations with the waiting period. My doctors wanted to postpone my surgery even more because it was difficult to get their schedules together to do my surgery. The wait was probably a little over a month. While you wait I suggest enjoy eating out and spending quality time with your loved ones. Try to take your mind off of it in between trying to have those doctors move up your appointment. Keep us posted on your surgery date.
Tongue Cancer 2004- biopsy irritated skin, 2014 biopsy precancerous, February,2014 partial glossectomy- diagnosed with microscopic cancer- April 2014- partial glossectomy- microscopic cancer /cancer in nerve, June 2014- external radiation July, 2014, brachytherapy, July 2015 biopsy- cancer (about 2 cm)/also in nerve moved more toward front of tongue, August 2015 Hemiglossectomy reconstructed with arm flap 2/3 tongue removed
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Corlis... how are things... sorry it's been a bit since I checked in. I am soo busy but miss lending my support so I try to get on a few times a week. I failed miserably at this over the last few months. Hugs and give us an update when you can.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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