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#190308 07-20-2015 11:17 AM
Joined: Jul 2015
Posts: 1
MikeD Offline OP
"OCF Canuck"
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"OCF Canuck"
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Joined: Jul 2015
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I have had surgery to remove growth have a 1mm margin. considering radiation.
Anyone have experience?

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Welcome to OCF. I have seen only a few members over the years with a similar diagnosis. Most of our members have their cancer located either at the base of their tongue or lateral tongue.

Im assuming your tumor was cancerous. Treatment decisions are never easy. I would suggest getting a second opinion. If possible at a Comprehensive Cancer Center (CCC). CCCs use a team based approach so all the specialists are on the same page. You want to take care of this correctly the first time so you dont have to continue getting treatments if they arent necessary or worse, face a recurrence if mishandled. The main OCF pages have tons of info to read and educate yourself about this disease.

Best wishes!


OCF Main Pages... Treatment






Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
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Welcome Mike D! I didn't have lip cancer, but tonsil located in the oropharynx, which has some aspects in common with lip cancer. What do your doctors think since you're considering radiation? 1-5mm are close margins, and greater than 5mm are clear margins, and less than 1mm are positive margins, so you're right on the line with 1mm. Surgery alone is often the treatment with T1 tumors, like you had, but negative prognostics, can change that and need for radiation. With lip cancers brachytherapy, an internal radiation, can be done at facilities that have experience with it or IMRT, a common form of external beam radiation.

Below are the NCCN Guidelines for Head and Neck Cancer, which include lip cancer, that had its own treatment guideline. These are 2013 Guidelines so if you want the 2015 update you'll have to register to the NCCN sight. Not many changes
occur year to year, but I don't often look in this section to say what was.

As mentioned, no harm in getting a 2nd opinion, and most often many patients are glad they did, even often times staying with who they originally saw, but sometimes not, and that's good too.

http://oralcancerfoundation.org/treatment/pdf/head-and-neck.pdf

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Hi Mike. My husband had a lesion on his lower lip. It was scc and It was in situ He had it removed with surgery and 1 month later had a total lip shave. Nobody ever mention scans or any further treatment to us. We let it go never gave it another thought and 8 months later my husband was diagnosed with stage 4 soft pallet and tonsil cancer It was devastating and no one will ever be able to convince me that the lip was not related to the throat. Get another opinion and watch for any changes.


Husband diagnosed 2/13 lower lip scc in situ 2 surgeries never scanned. 8 months later diagnosed soft palate scc stage 4A, tonsil and nodes involved. Hpv positive. Told by ENT small t1 tumor brought in to surgery for tumor removal and neck disection. Aborded surgery. Stage 4!! Finished rads and chemo Jan 2014. Grade 4 ORN of the maxilla, 30 HBOT , sinus surgery , maxilla surgery, buccal flap 4/2015. Doing good. 9-2015 red patch on soft palate , waiting to see.

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