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#189954 06-15-2015 09:58 AM
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What is the procedure of removal of feeding tubes? Is it surgical? Is the hole sewn shut?


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
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PEG tubes are removed right in the doctors office. Most doctors will want to make sure the patient is able to sustain themselves without using the tube for a month or more prior to removal. They must maintain their weight while not using the tube. Better to hang onto it and not need it than to have it removed and end up getting another one a couple weeks later.

To be honest, this is going to hurt (only a very brief flash of pain). The doctor will give one big pull, yanking it out then quickly cover the opening with gauze putting some pressure on the site. For me, it hurt like heck for about a minute (it took my breath away!) and then I felt instantly better and was able to stand up nice and straight for the first time in many months.

Good luck!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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The stoma is not stitched. It closes by itself and healing goes from the inside out. If you haven't had the PEG for a long time, it could close up in a matter of days. People who have had it for a long time, like my husband (2 1/2 years), a mature channel may have formed in the stomach and the stoma may not close entirely. We are waiting for an appointment to go in and have an endoscopy so that the doctor can put a couple of clips in the stomach to make it close. The actual site on his tummy is now only 1 mm or so in size.

Like ChristineB said, my husband had to be taking all his nutrition by mouth for three mouths and his dietitian had to confirm this with the doctor before the tube was removed.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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Kris has had 2 different types of PEGs. The first was the long pendulous type. This was removed by a hard yank. No problems
The PEG was reinserted 3 months later when he had his recurrence. This one was a Mickey button. This was In place for 3 years and 3 months. 2 weeks ago Kris decided it was time he had it removed permanently. I just simply deflated the balloon and took it out. Much as I did when I changed it for a new one every 4 months. Just that this time, I did not insert another one. We did consult with a surgeon prior to this and he told us that it would just close itself, and it has. He did say that if it continued to leak that he would need a surgical closure. Kris won't be needing this. I must say neither of us are sorry to see it go.
Good luck with yours,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Thank you for your responses. I have had my PEG changed out 4 times. Once in Office and twice in out patient. It was originally placed at the end of a badly keloid Gallbladder removal scar. The first PEG was large and others smaller. The opening didn't get smaller but did develop a growth about 1/4" in size on side which bled and leaked everyday.

The one replaced in office - the tube filled with blood. I returned to Dr and he had my wife flush as he had no syringes in office.

I have made and appt with a surgeon to discuss remove the stoma hole all together (football shaped cut around the hole). Then stitch it back together in layers.


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Oct 2012
Posts: 1,275
Likes: 7
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Larry,

Do you know if the growth is granulation? If so, it can be removed using silver nitrate. What did your doctor say?


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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Saw ENT yesterday. It's just granulation tissue. He agreed I am doing better and wrote a script for me to have tube removed. My GI said July 7th if I can go without formula til then and maintain weight. In office is fine. ENT said it should heal up in 7 to 10 days from inside out. So I am happily doing my best to eat!


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Dec 2010
Posts: 5,260
Likes: 3
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YAY.... hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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That's good news indeed Larry.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Nov 2014
Posts: 73
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I got it out. Lots of blood soaked through dressing by time I got home. I emailed Dr for instructions. Nurse said I can take a shower. I want to ask has anyone else had a lot of blood and can you let soap and water go into the hole? I asked but only answer was change dressing when wet and take a shower.
I am allergic to the tape. Is there any other way to keep a drainage spong on?
Appreciate any advice.
Glad to have it out.


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
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