| Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | There is toothpaste via Rx for sensitive mouths. One is called Prevident 5000; there are others. Your dentist can write one for you.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I used natural toothpastes tom's is one... there are a few others that are liquorish flavored etc... that don't burn as much. I also used the children's sensodine/pronamel. It doesn't burn as much because its less MINTY.
hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Pattie,
I was one of those really slow healing patients and really baffled my doctors. I lived on smoothies for well over a year. I liked them cold and would also add protein powder and ice cream.
The suggestions given in this post are great. I tried a few magic mouthwash mixtures, one that did help sooth the ulcers included Maalox and I believe 2 other ingredients. I'll see if I can find out what they were - this was many years ago.
I never tried the Manuka honey, but heard good results with that.
Waterpik is great, also salt and/or baking soda water rinses.
My tongue was also swollen for a long time, and my doctor put me on prednisone. Eventually the swelling and ulcers went away, but still get an occasion ulcer.
As one point my doctor sent me to an infectious disease doctor to see if something else was causing the ulcers (nope). I was just one of those that radiation hit really hard.
It will get better! (((HUGS)))
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: May 2014 Posts: 17 Member | OP Member Joined: May 2014 Posts: 17 | Susan, Thank you for your reply. Sorry you had to go through it, but just hearing that someone else had the same issues I have makes be feel relieved to know that one day I will eat again. I did add protein powder to my Boost and milk. the Magic mouthwash I used was Maalox, Liquid Benadryl, and Nystatin, burned like hell.
Surgical biopsy Jan.2014 diagnosed verrucas carcinoma, previously biopsied by oral surgeon in office diagnosed verrucas leukaplakia. Radiation 33 sessions 4 chemo. Jpeg March 2014, removed Dec 2014 when started drinking boost. Surgical biopsy Oct 2014 - Jan. 2015. no cancer
| | | | Joined: May 2014 Posts: 17 Member | OP Member Joined: May 2014 Posts: 17 | Childrens Sensodyne sounds like a good idea. I was going to try Tom's but it has Peppermint oil. I'm sure that would burn.
Surgical biopsy Jan.2014 diagnosed verrucas carcinoma, previously biopsied by oral surgeon in office diagnosed verrucas leukaplakia. Radiation 33 sessions 4 chemo. Jpeg March 2014, removed Dec 2014 when started drinking boost. Surgical biopsy Oct 2014 - Jan. 2015. no cancer
| | | | Joined: May 2014 Posts: 17 Member | OP Member Joined: May 2014 Posts: 17 | Cheryl, thank you for your input. Not just Dr's but even friends who don't see the whole picture. You're alive and cancer free is definitely the mind set. Saw my Dr. on Friday and gave me some pain meds for nerve pain. I get the feeling of needles or hot strikes in my tongue. Hopefully this will help. She also had me talk to the nutritionist and wants be to consider counseling. I think she is starting to understand that this is not OK. Nobody wants to be in pain everyday.
Surgical biopsy Jan.2014 diagnosed verrucas carcinoma, previously biopsied by oral surgeon in office diagnosed verrucas leukaplakia. Radiation 33 sessions 4 chemo. Jpeg March 2014, removed Dec 2014 when started drinking boost. Surgical biopsy Oct 2014 - Jan. 2015. no cancer
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | the needles and such are a good sign can mean a little nerve regeneration although it's not fun. Do some tongue exercises to help it along. I'm glad they are acknowledging the pain.
Hugs... BTW... flavored tooth paste... liquorish orange doesn't burn as much. My tongue still hates mint but tolerates the children's.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2014 Posts: 17 Member | OP Member Joined: May 2014 Posts: 17 | Had too many side effects with the nerve medicine. Glad to hear it could mean nerve regeneration. Doing mouth stretches with tongue depressors. I take hydrocodone when i can't stand the pain, usually by evening.
Surgical biopsy Jan.2014 diagnosed verrucas carcinoma, previously biopsied by oral surgeon in office diagnosed verrucas leukaplakia. Radiation 33 sessions 4 chemo. Jpeg March 2014, removed Dec 2014 when started drinking boost. Surgical biopsy Oct 2014 - Jan. 2015. no cancer
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