| | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Cal.... let me share.
He needs to keep a close eye on it. I had the exact same thing years ago!!! and it was removed. 10 years later after two biopsies they found a tumor IN my tongue... and yes IT HURT.
I am not saying it's cancer I am not saying it will become cancer, I am saying he needs to keep a close eye on it and see someone every six months particularly if it persists. It cannot be ignored. Plus if it becomes more painful and worse he needs to go back right away.
My first biopsy came back the same as his.
My second one came back inflamed tissue (they had removed the plack years before it had healed in that area, but a tumor grew UNDERNEATH so there was no sore or lesion just redness and pain)
a few years later it had developed into an actual lesion and it was a stage 2 cancer.
He needs to be diligent. He's young. It's very rare, but not unheard of.
I am a veg head, have never smoked or drank in my life.
I believe it was related to chronic irritation by a tooth in that area.
best of luck. and yay on the cancer free.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | Yes, be diligent, but don't let that build to paranoia. Be informed by the doctors not the internet (including us). We're not doctors we are mostly patients and carers. We'll share our experiences and suggestions with the best intentions, but you should take everything that concerns you to your doctor.
I use the internet to understand why the doctors are doing/saying what they do. If they say don't worry about it for 3 months because of xyz, I try to put it aside for 3 months. don't worry about it. The worry never quite goes away, but if I can't put it on a shelf for a while it would drive me nuts.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | | Joined: Jun 2015 Posts: 9 Member | | OP Member
Joined: Jun 2015 Posts: 9 | Results of biopsy showed mild dysplasia. The oral surgeon will strip the area and clear the margins. Not sure if i am using the correct term for removing the lesion. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I know it probably sounds bad to you but to oral cancer survivors you are very fortunate! Its not cancer so hopefully only a quick surgery and thats the last you will have this problem.
Best wishes with your upcoming procedure.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2015 Posts: 9 Member | | OP Member
Joined: Jun 2015 Posts: 9 | Thank you so much Christine. | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes... that's terrific. Keep an eye on the area after the surgery. Go for regular check ups. Anything unusual go back to your ENT immediately.
hugs and YAY!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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